Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
I had hoped I would experience none, and I started right in with the new ones, so the old ones would be there in case of problems.
I've had problems all right, nausea, diarehea fluctuating to severe constipation where even normally used laxatives don't do anything for me but upset my stomach more and make abdomine hurt more, to dizziness (severe), headaches (also severe) and slow increase in pain until by the 3rd and 8th day I had to take the old formula praying for some relief, which I got both times. The 8th day being today.
I was afraid to go to the urgent care at the hospital figuring they would just label me as a junkie unable to get my high on the new oxy! I'd rather die than deal with that kind of shit, I deal with enough just to make it through the day, don't need them making things worse. Besides what would they do? probably nothing.
So finally, I have a call into the doctor to discuss it. I am really hoping it is just an adjustment period needed as I've had lots of problems with other long acting pain relief that was very nasty, don't feel like playing russian roulette again while trying to find something else that will work for the pain!
Hope more people don't have the reaction like I am and some others, it's not a reasuring feeling when the medicine that had been a blessing starts to become part of the pain problem...just wanted to let others know how I'm reacting incase it helps them to speak up as well.
Sure would have been nice if nothing but pain relief had happened, but I seem to be all out of that kind of "LUCK".
Like truthspeaker it was over one week when I started to feel bad and I believe that is not only due to the absorption of the new OP but also that we still had some of the old running through our systems.
In the past 4 days now I have had headaches too which I very rarely ever get. I didn't know it was the new OP causing it but after reading other people's experiences/side effects I do believe it is the cause.
This medication was ruined thanks to the abusers. Now we the ones who have true chronic pain are suffering because of this.
I read a story on another site where a person who took it rarely and not prescribed took one of the new ones and became sick and never woke up the next day dying from it.
I have a feeling if this new OP kind starts killing more people and putting true chronic pain patients in the hospital, they will be forced to change it back as I honestly believe it is now much more dangerous than the old OC version.
The abusers have already figured out new ways to abuse it that are more dangerous than the old ways they did as I've read that online also which enrages me.
The only way we are going to get the medication we desperately need back unfortunately is going to come from the deaths of abusers and real chronic pain patients who do use it correctly.
That is sad as why should we have to pay for what drug junkies are doing? Many of us are paying a very high cost to our health and nobody knows the long term effects of this new OP.
Purdue should've tested it enough to know that it could be more dangerous to abuse and to take correctly.
I read on a comment that Purdue told someone that they only tested it on 133 patients and only on the 20mg dose.
If that is true, they sure didn't do their job correctly.
I hope we all start feeling better soon. I pray none of us die from this or are hospitalized.
Also, I do not take anything for break through pain because addiction was always one of my concerns and the new op's only seem to last 4 hrs but bring on so much more :(
Thank you for posting I am NOW calling my doctor and Prudue Pharma. I dont need more problems with my health from a drug that did not do through testing on.
However, I have been yelled at, lectured and driven to tears by three doctors since I took it, simply because I honestly answered the question "What has worked for you in the past?"
One just plain went apoplectic on me! My current pain doc has two different printouts in the waiting room and in case you missed it, copies on the wall behind the exam table and right next to the magazines about Oxycontin abuse. He lectured at first and the second time he asked, yelled at me for a bit. Finally he told me flatly that he does not and will never prescribe it. Instead, he went with one I begged him not to because I had gained 40 pounds in one month on it. He insisted it wasn't the morphine. Couldn't be. Never mind that getting off of it resolved the issue. So, of course, it happened again and nobody seems to want to so much as take blood to see if there's really something else going on or talk about it for that matter. My PCP told me "Now you know what it's like for the rest of us." If they aren't crushable anymore, do you think I have a chance at getting them again? It would be nice to do zany things like sleep more than every other night. Maybe I'll get really crazy and cook something for myself! Sorry, that sounded whiny. Just that it actually did work enough to give me that elusive functionality and the occasional visit with a friend while not having to lay down as I talk to them. I'm not asking to do carpentry here! LOL! My little take on oxycontin. Is that attitude - of the doctors - just a city thing or does it happen in smaller communities as well?
I talked to my doctor on Wednesday morning who talked with the pharmacist (my pharmacy JUST got the new medication; mine was actually the first prescription so they have no experience with any adverse effects). But they did scour their stock and found 16 tablets of the old medication in stock so my doctor wrote a script for the 16 tablets and I've been taking those at night and just dealing with the pain using BT meds during the day and have 11 days left of pain relief before I have to resort to chasing the pain with BT meds only (unless I can get in to see pain management before then).
I do not know what is in these new gel caps, but I want my old medication back! I also want to know what ingredient is in the gel cap that I reacted so violently to (especially as I continued to react violently even after starting to take my breakthough medication on schedule and actually getting more oxycodone in my system over time than I would using the sustained release). I want to know, so I can avoid future exposure; this is not an experience I want to repeat.
For us pain patients, especially those of us who are either allergic to or get no relief from other pain medication (I'm in the latter category; an anestheiologist's nightmare as even the heavy duty sedatives don't have an effect on me), what is left? All of my pain doctors are overwhelmed with wounded soldiers and marines; being retired military I'm not at the top of their list for pain treatment right now (although they find me a fascinating case). And my doctor isn't an expert on pain medication; he had already put in a pain management consult before I took the first of those horrendous gel tabs.
BTW, Did anyone read the article by one of the doctors here on DS about the "new OxyContin". She mentions that the Purdue certified that the medication is bioequivalent, meaning there is the same amount of active ingredient in each gel tab as the previous version. HOWEVER, there was no testing on the delivery method; the FDA just gave Purdue a green flag to put an untested product out on the market and we, the consumer, are the human test subject for Purdue Pharma. I don't know about you, but I know I didn't sign up to be in a clinical trial for a new delivery method for an existing pain medication! Did anyone else? No? Didn't think so.
Obviously we are the guinea pigs in an after market "report it your own damned self" system. Could that be because the FDA has decided that the American pain patient isn't important enough to warrant any protection? It seems they only believe that those who abuse the medications we need to treat out pain should be afforded any protection, in the form of protection from themselves. I'm confident the FDA is thrilled with the new medication; it meets all of their REMS and other "keep an addict off Oxy today" requirements. Never mind the reality that it will push the die-hard addicts from a known controlled substance straight to heroin instead and chances are the death rate will increase; those who can't defeat the coating aren't going to just quit cold turkey and give up the lifestyle or all clamor to get into Betty Ford for treatment instead!
To those for whom the new formulation is working, I am truly happy for you and I wish you continued success and hope there is nothing in the gel tab that is harmful in the long run. Alas, for me, it was a complete and utter failure and the search is on for a new long-acting medication. Yes, Tipper, methadone is about the only option left. I truly hope it works.
btw I found the HR4596 stop oxy abuse act of 2010. I wrote to the CA senate lady who introduced it. I intended to write to all senators who agreed with it. I did write my own reps/senators. Long story/what I said and all. In pain...gonna go take a pill and lay on my stomach and try to watch tv for distraction. Dumb pain. Anyway I wanted to say I share your concern over the new oxy. If enough people post here of negative side effects I may ask doc to give me zofran and morphine..or God forbid methodone. Oxy was so helpful...no side effects OF COURSE we are nervous that it's being taken from us. It's our bodies! Don't feel bad about that! We are entitled to our opinions about what goes inside us. It's ok to have feelings. Don't feel like a druggie...don't let anyone make you feel that way. CORRECT them. Add 'I hope you never have to endure severe never ending pain'. Either they will or will know someone who will. And they will remember your words and be kinder next time. My best to you...to all of you.
More more experiences with the new oxy?
The itching could also indicate that you are allergic to some additive in the new Oxy. This should maybe something you discuss with your doc. Also my over the counter allergy meds may help with the itching, but talk to your pharmacist about any interaction this may cause with your meds, Kim.