Chronic Pain Support Group

Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...

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onlywan 03/20/2009

hi all.. I'm new here & trying to find my way around. I see I managed to join the chronic pain group which is a good start. I've done a few searches on "Occipital Neuralgia" which is what I have but I don't see a support group specifically for that although there is one for another type of neuralgia.

I'm wondering if any here struggle with Occipital neuralgia & what has helped?

I've tried chiropractor (he made it worse), physio, naproxen, tylenol #3, tramadol, & now am on lyrica but it's too soon to tell if it's really working.

The headaches are really bad & my MD put me off work last week.

deleted_user 03/20/2009

Hi and welcome to chronic pain.
I dont know much about your pain but try doing a google search that may help.

deleted_user 03/20/2009

hi and welcome .I also do not know a lot about your condition , but i know that neuralgia is very painful,hard to control hugs minnie

onlywan 03/21/2009

Thank you both for the welcome. This site is really something, I joined for the chronic pain issue mainly, but I see it covers a vast number of issues we human beings struggle with - very helpful indeed.

Anyone who has neuralgia, I would love to hear from you & how you cope & what meds or treatments are helping you.

deleted_user 04/03/2009

I am new here too. I have supraorbital neuralgia--splitting 24/7 headache. it is awful. how is the lyrica working? it works for trigeminal neuralgia but my neurosurgeon told me anticonvulsants (lyrica, trileptal, neurontin ,etc) are not often effective for other neuralgias. After 3 yrs of being on and off different meds, I now have my pain somewhat under control on oxycontin ER

onlywan 04/03/2009

hi! thanks for the reply, I've never heard of supraorbital neuralgia. what area does it affect? So far the lyrica isn't doing a whole lot for the occipital neuralgia - I find it makes me incredibly dizzy! I'm also going to the chiropractor for laser-therapy (bioflex). He says the condition is so far along that the laser therapy may not do a whole lot but hopefully will decrease some pain level. I've heard good things about this type of therapy.
Aren't you afraid of getting hooked on the oxycotin? I am hoping to not have to use narcotics again for the pain..Never found they helped much anyway. phooey..

deleted_user 04/06/2009

it is basically just a 24/7 burning headache right next to my right eyebrow. it hurts all the time, but gets worse when i get other tension headaches; when i touch it (or when rain or wind hits it); and some days it is just flat out unbearable for no blatant reason. yes--i hate being on the meds more than anything...but nothign else has worked and it really is the difference between being able to function and being unable to even move. good luck w/ the laser-therapy--it hope it works :)

GTK 04/09/2009

Hi and welcome to ds... it is a great place and I'm sure you will find tons of support here.
I have saphenous neuralgia (it's in my leg) so I feel a lot of empathy for anyone who is battling neuralgia... it can be such severe pain and it's not easy to find something that gives relief.
There is a sub-group of this chronic pain group for people with neuropathy... you might find it helpful to join that one also (there is a lot of good info there about neuropathy and neuropathic pain) and perhaps there may be someone with your condition who is a member there. http://www.dailystrength.org/groups/neuropathy
Wishing you all the best,
take care... xxx

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