Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
Looking for answers...need a doctor for elective amputation of a dead leg, has anyone done this? Our doctors want to keep the leg and just leave it in a plactic brace forever to drag around, its an anchor and burdrn. Amputation and training with a prosthetic could restore quality of life and mt father could walk without a cane or even run again someday. I am asking all over for months now but only find dead ends and people saying "no" but I cant accept that...does anyone know anything?? Anything helps. Thank you and god bless!
*Gender: Male
*Non-Smoker
*Age: 63
*Height: 5'11"
*Weight: 177
*Insurance: Medicare with United Health Care
*Current Medications: N/A (takes Ibuprofen daily for pain)
*Medical Issues: High Blood Pressure, on going pain from nerve/spinal damage (Atrophy & Neuropathy)
*Previous Medical Issues:
9-29-2000 was the date of work related injury, which caused herniated disc and spinal damage. Treatment attempts resulted in a total of 8 spinal surgeries between 2001-2005, of which 5 were on lumbar and 3 on cervical. Implants were used to take pressure of spinal cord which is crushed in those 2 spots. Currently 13 major and 73 minor muscles that dont work at all (cant move/feel left leg below knee which also causes drop foot, and can't turn head/neck to right). Also had Gastric Cancer in 2008, but cured in 2009 and continues yearly checks. Individual makes daily efforts with exercise to maintain fitness and is able to walk with minimal assistance to drag left leg despite multiple doctors telling him he would never walk again.
***Our Question: We want to find a doctor for amputation of dead leg (left side, below knee) because drop foot makes walking difficult and stairs/running/etc is impossible. A prosthetic leg would greatly improve quality of life and make it possible to intensify gym workouts focused strength building.
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I was recently separated from my wife of 33 years and it's complicated. Anyway I rented a room about 15 minutes away and I see my kids about once a week. I see the people who own the house I live in once in a while but other than that I stay in my room where I do my cooking, wash dishes in the shower, read, color, and sleep. I get out at least once a day. I grocery shop and I attend 2 meetings...


I don't know where you would go to get your question answered but it would seem to me that even having a prosthetic leg would present a whole new set of problems. Maybe I'm wrong but if it were me, I wouldn't let any doctor cut me with a knife unless my life depended on it.
You could ask your primary care physician to refer him to a specialist, if you haven't done that already. Maybe someone else in this group can give you a better answer. I will keep you and dad in my thoughts and prayers.
God Bless
Mayo Clinic, Johns Hopkins, Duke, Houston Methodist, Baylor, Memorial Herman, UC San Francisco, Cleveland Clinic and Mass Gen
These would be my short list on good hospitals to check with, even though the odds are still against what you want,
https://www.aofas.org/footcaremd/treatments/Pages/Below-Knee-Amputation.aspx
This is an article that explains why you can't just amputate a leg below the knee, why it would not be valid for a prosthesis. There are certain things a knee has to be able to do and most of these it doesn't sound as if your fathers can.
Take care.
I have worked with people when I was nursing. It may seem like the best solution to amputate but then you get phantom leg pain. which is very bad. Iall I can say is think about it long and hard. I know I often wish that after my accident they would have taken my leg. But when I worked with people who had prosthesis I saw it is not easy. A lot of them get sore from the braces. It's not easy to walk or move around without a leg. it is also very hard to deal with having a brace for a leg. I live with daily leg pain, but I am happy I have a leg, I can walk now with a cane. I have learned how to walk. But it took years. with braces. I hope you do not suffer with pain. We cant tell you what to do. We are here for support of either decision, good luck casey
I guess the question you have to ask is he strong enough to do all the recovery and PT involved in having a leg amputated and then learning to use a prosthetic? Could he get used to a brace and maybe a cane with lots of rehab? My mom has a new brace that is pretty amazing and if she were willing to really push herself I think she could get around with a cane. She has no feeling from about mid-cafe down.
Good luck, I feel for your struggle and you wanting so badly to help your dad. Take care.
What does the EMG show ?
Based on what you have provided, I have to side with his doctors and agree that the amputation will be a bad idea. You are not only disrupting the bones and the vascular supply, but also the muscles and the tendons. Even though the leg is atrophied, the tendons and muscles are attached exactly the way they are suppose to, to maintain the shape of the leg.
Amputations are incredibly traumatic and incredibly painful. I had to teach people how to get out of bed, how to sit, how to walk after amputations - the pain is unreal.
Maybe it would be different for your father, since he wants it, rather than is forced to have it, but I think there is a huge risk of complications from an amputation one can avoid while living with an atrophied leg.
If the damage is st the spinal cord level, removing the leg is not going to fix the problem. Demyelination of the nerve coming from the back caused irreversible loss of function. If you remove the dead leg, you are still not fixinng the cause of the problem. If he gets a prosthesis, it will be just like having another dead leg.
I would suggest going to a major city like New York, Boston and consulting with a microneurosurgeon to see if he is a candidate for a nerve graft instead. If he has a dead nerve in the leg, they may be able to replace the nerve.
Good luck !
Ultimately it's up to your pops on what he wants to do. If he feels he can have a better quality of life, then it is his decision. There are people born with deformed feet who have an amputation and can walk for the first time. I would seek out one of the best most qualified surgeons for opinions as a lot of doctors are not skilled in this type of thing. I would do a lot of research. It sounds like your pops is a fighter and will fight to get his strength back after said surgery. But the nerve damage is also an issue, because it can still affect the part of the leg that they do not amputate and cause issues. So, there is that to consider. I really feel for your pops. You're a good caregiver to try and find answers for him. Keep on searching. That is how we find the answers and information we need to move forward. Hugs.