Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
deleted_user
Hey Everyone,
When I posted about having surgery 2 wks ago alot of you suggested that I tt my pmd about a med change when I said the norco 10/325 3x a day was barley getting me thru.
I am not new to pain, been battling for years - however, I am new to this "guilty until proven innocent" pain management routine.
I talked to my doc, he changed my meds on thursday to Nucynta 100 mg, 6x per day. Since I started taking them my pain is constantly nagging at me. Can't sleep or get comfy anywhere. I'm walking with my cane again and I know today I'll be dusting off the wheelchair to get around. Mind you, I have MS and a really tore up back. MS is pain causer to begin with but the back is m'fer!
I called the pmd yesterday and tt a nurse. My doc was not in but she tt the other one for me. I was told "the nucynta is stronger than the norco so you should not be in that much pain". Huh??? I have a appointment on Monday at 9 to see my doc and fix this painful mess.
Is nucynta something that needs to build up in your system? Does it not work on some people or am I just a weirdo? Do I continue taking it until monday or give up? Its funny, I thought the norco wasn't working at all, now I know it did work - at least a little bit. I know nucynta is a new drug but I (being the fixed income queen) accepted when big pharma paid my copay in full. Dumb me.....
Thanks for any advice. Think some happy thought for me please! I'll be sitting on the sidelines all wkend being stared at in my w/c watching my kids and hubby play. What a ego crusher...
When I posted about having surgery 2 wks ago alot of you suggested that I tt my pmd about a med change when I said the norco 10/325 3x a day was barley getting me thru.
I am not new to pain, been battling for years - however, I am new to this "guilty until proven innocent" pain management routine.
I talked to my doc, he changed my meds on thursday to Nucynta 100 mg, 6x per day. Since I started taking them my pain is constantly nagging at me. Can't sleep or get comfy anywhere. I'm walking with my cane again and I know today I'll be dusting off the wheelchair to get around. Mind you, I have MS and a really tore up back. MS is pain causer to begin with but the back is m'fer!
I called the pmd yesterday and tt a nurse. My doc was not in but she tt the other one for me. I was told "the nucynta is stronger than the norco so you should not be in that much pain". Huh??? I have a appointment on Monday at 9 to see my doc and fix this painful mess.
Is nucynta something that needs to build up in your system? Does it not work on some people or am I just a weirdo? Do I continue taking it until monday or give up? Its funny, I thought the norco wasn't working at all, now I know it did work - at least a little bit. I know nucynta is a new drug but I (being the fixed income queen) accepted when big pharma paid my copay in full. Dumb me.....
Thanks for any advice. Think some happy thought for me please! I'll be sitting on the sidelines all wkend being stared at in my w/c watching my kids and hubby play. What a ego crusher...
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Are you having any other withdrawal symptoms to indicate that you could be having w/d pain rather than just lack of pain relief?
I'd definitely give it a couple of weeks if you want it to work out.
I will say that when I switched from 90mg MS-Contin to a 12 mcg/hour fentanyl patch (we went down in level for a reason), I had a massive increase in pain for about a week and a half- this was withdrawals (opioid receptors saying "waaah! you took away our happy juice! we don't know what to do!). The following few weeks was much more comfortable, although the 12 mcg/hr did not provide enough pain management, at least my normal PM tools besides meds worked.
I've heard great things about Nucynta, but like any med it isn't for everybody. But we do have to be willing to suffer some pain increase when we switch meds, since no medication is going to work forever (it's the nature of these meds to lose effectiveness over time).
See what happens, your body might build some up, all meds have a half life maybe you haven't reached a blood level high enough to offer you comfort. please keep us informed and god bless
I was unaware of Nucynta at all until just this weekend. Is it supposed to be like suboxin (sp?) or Lyrica? Or something like that?
Hope you get your pain under control soon... I have an appt Tuesday to get off this evil new oxy OP!
Hugs,
Riss
You know, as chronic pain patients, I understand that it's difficult, but when doctors give us poor treatment we really need to vote with our feet whenever possible. I think really good pain management doctors don't need to treat everyone like that, because they can tell the difference. If you have options, don't feel bad about looking around for a PM doctor who will treat you respectfully!
The problem with both of these meds is they are not long acting and only lasts about 3 hours tops and even then didn't give me enough pain relief after one week as I already had a follow up appt with my doctor.
When I went back and told her it wasn't working, she ended up giving me Kadian; a synthetic Morphine long acting pain opiate.
With MS, you should be getting a stronger pain med as I've known people in chronic pain with MS. I have RSD and have even heard a couple people with MS describing their own pain like RSD pain so that lets me know how bad it truly is.
Until only this year was I able to get back to what I feel is doctors that treat pain patients with respect. For several years I felt trapped in a pm place with doctors who didn't care at all.
It took me one year due to having only Medicare to find a doctor that would take my insurance but getting out of a bad pm place has been the best thing as I know it only causes you stress with each time you have to go or feel like you are being more proactive in your care than your doctor is willing to be.
I ended up going back to my 1st pm doctor who diagnosed me and he told me after 11yrs I no longer belonged in pm; I needed a doctor to take care of my entire health as like MS, there are other health issues besides pain and we shouldn't have to go every single month just to get scripts and no help otherwise.
Now I have an Internal Med doctor who does it all and is very versed on treating chronic pain as I even signed a pain contract with her.
She has been the best ever. She is the one who finally put me on a med strong enough to deal with my pain when NO other doctor ever dared to try a different med.
She also ensures my entire health is taken care of so I don't feel like I have to go to more than one doctor for anything unless I need a specialist for some other reason.
Just like you when I was taking the Oxy IR, I couldn't sleep, I couldn't get comfortable at all, and my pain was so out of control.
Maybe instead of naming a med, you could possibly say you feel you need a "long acting pain medication" as there are a few options.
With most long acting pain meds, you may also need the Norco or some other break through pain med as I do.
I hope this helps you,
Rhonda, IN
Dont you hate when you call and they sort of blow you off and they get to go on with their day and we have to sit in pain. you want to call back but you dont want to be a pain, but be a pain and call and tell them you want to change back and when you go into your visit you will talk about it then but dont sit in pain just to keep the peace. If they have a phone in number you can call on Sundays call now and have her call it into your pharmacy.
When I want someone to do something, I just sort of demand it I would call and say this isnt working I want to go back on the other med here is my pharmacy number and I will be there in an hour to pick up and do not let her get in a word or let her think there is a option to say no.
Sorry you are feeling so bad
For those who don't know, my first "pain doc" didn't Rx opioids and the shots were not enough. My 2nd pain doc had a PA who was so astoundingly rude that it blows my mind that I sat there and took it for a couple months--- I was really THAT desperate for help! I would do practically anything to win her over. I am a tough lady who has been through a lot in this life, but it was still traumatic, and even now I flashback to that horrible time when I am stressed. Yes, I know there is no connection between her and my current stressors.
For the last 1.5 yrs, I have had a wonderful doc--- intelligent, kind, compassionate and generous. He has the nicest and most caring, professional, and knowledgeable staff. I couldn't order better people from God himself!
I now regret not leaving the 2 bad situations much, much sooner. HurtHummingbird and DallasBull--- put on your "boots that were made for walking." A long commute, a tardy doc, and other inconveniences are sacrifices well worth making for an excellent doc!
My doc is a 3 hr RT, he is often tardy so I bring a book. I know punctuality is a much bigger deal with some people than it is with me, but I prepare for it and make no plans after my appointment. He personally spent 3 HOURS with me on my initial evaluation. He takes as much time as it takes with each of his patients. He will give you 15 minutes or 3 hours--- whatever it takes to do the job right! He never rushes anyone and wants to answer all our questions and explore all options available to us.
Now that I know what a good doc is, I would never settle for less. I suggest that you don't either!
In the meantime, here is some info I found about nucynta...
http://www.drugs.com/nucynta.html
Wishing you the best.