What "advice" and "questions" sections? But there's no CP-specific section like that, right? Anyway, part of "support" is helping people get effective treatment, isn't it?

More importantly, who said I was talking to everyone in the group with that new thread? There are some readers who could have benefited from the message - nobody needed to take it as an attack.

Meanwhile, although I didn't actually say the word "conspire" - look around - it appears that someone is trying to railroad me out of here. That's shameful, and it wouldn't be the first time such behavior has happened in the group. We could use some people around here acting as positive influences and encouraging members to show each other basic respect. I'm not used to groups like this where things are allowed to get so bad.

gm i made a comment asking you to please move on, and not keep this going.. this is my reply if you failed to read it...

GM, your post was clearly closed for a reason, and we need to move on, and focus on health issues like you said.. defending your position is pointless, and a waste of time.. if your a sincerer individual, and have a kind heart, you will not keep coming back and trying to make a point.. please allow some time and space for all concerned..
just my thought on the matter..
~stinke~

When you first come on to the CP board..
There are sections titled Recommendations and Advice.
That is where more medical topics tend to come up.

I happen to believe that you have good intentions.
The reason for addressing this here rather than in private messaging..
Is to try to " calm the waters".. so to speak.

I THINK what you're trying to do is to spread some awareness you feel needed. That....though possibly misguided here..is a good intention.
Can you not at all step back and see how some might take offense in the manner you go about it?

This is not the first time you've made a post here that could have been helpful..that instead was somehow insulting.

If you CAN'T see that...then, you can't change it..
And the message you hope to get across gets lost in
The offense you give.

Why can't you just make a post about your experience in finding a DX.? About your illness and it's treatments. And what it's like to live with them.

From what I've seen of support groups...they work best when folks " relate"....rather than dictate.

Hugs.....jc

GM, If you want to be a part of this group why don't you just start posting to others threads and give some support. There is no core group here....

it is just who ever is able to post that day, posts.

We have a few main threads like the good morning and the positive thought and prayer thread which we need for structure and so people will feel a sense of stability and something to look forward to.

You can or don't have to post to them.

But other than those, it is just who ever comes and feels like posting.
You are welcome to post, ask questions and be a part of this group.

I know things have gotten off to a bad start but it is never to late to begin again and this group is very forgiving.

We have all forgiven and been forgiven.

I hope you can get the support you need.

Jan your post was here when I got finished.... I didn't ignore you.

:)

Can you please link me to those sections? Because I 'genuinely' don't see them.

I disike posting much information. Ultimately from experience in people attacking me when I have self-disclosed. If someone were to post about an experience similar to mine - which is what I want to happen - I'd be more likely to share. (I've never been to an ER for pain, I don't take pain meds.... so there's little reason for me to post in those threads.) But for physical reasons alone, I'm very unlikely to write a long post about my life. Or because I don't want to actively think about how bad my life is.

"Calming the waters" clearly didn't work and made it sound like all the blame was on me - so please don't do it that way in the future. And, no, even after re-reading it a few different times, I don't see what about my post was "insulting." (A few months ago, I said some things like "Holy..." and "probably have" which some people - but maybe not the intended target - felt was too extreme and I'd word things differently if there's a similar situation.)

I hereby remind me people that I have been a group member for years. It's annoying that I'm misidentified as a cowboy riding into town and not appreciated for occasional past contributions.

OK..

You got it, GM.

Hugs....jc

JC, i admire your ability to see the best in this situation. i try, but it's very hard. i'm going to have to hit ignore. it seems to be a wasted effort to communicate.

i just can't communicate on this level right now. you hit all the good points and i, as much as every dedicated member here, want to feel safe and supportive.

GM, i wish you no harm and only healing, but please look at your approach and read the threads.

Still not getting the info I want, nor something else I'd like to hear....

By the way, there is no real direct treatment for what I have. I'm physically fragile, and I have to cope with that. I can easily imagine someone with EDS physically breaking down in just a few fairly mundane ways and seeking treatment for the damaged areas with no clue that it wasn't just bad luck, too much computer use, years of playing sports, or some other simple & incorrect explanation. But I didn't think of basing my thread around that because I didn't want to limit it to just the few no-clue EDS people who might be around. People who drone on about pet topics are annoying.

You don't sound like you like people very much, GM. It's give and take.
We all get annoyed!

But have you ever read where it says to bear one another's burdens?

Love one another?

Do unto others as you would have them do unto you?

Can you give just a little?

My dense writing style isn't CP-friendly, I know. But there's no malice in that.

Directive statements aren't "insulting," per se, even if some people dislike hearing them.

So here I'm truly ignorant.

so can you be open to learning. you say in your profile some things that through your own word that you don't relate well.

as i've asked before, could you read through posts or search on topics that apply to you.

we are not a hostile group, we are protective of each other.

if you put a wall around yourself, you'll never make a true connection. could you please try to be less confrontational?

Your style isn't dense. And if you mean no malice then good.
Directives are not usually insulting but can be.

I think we all want the same thing here. To understand and to be understood.

I hope it happens!

Hugs and peace!

I'm not ignoring your request to copy and paste that section..
I just learned how to do that on my noepad...and, for some reason, can't do it here.
Sorry.
Hugs.....jc

Chronic Pain Support Group Edit Membership | Invite

General Discussions : Recommendations : Advice Add a Topic

Minimize

Minimize

Sticky Topics
Chronic Pain Support Group Edit Membership | Invite

General Discussions : Recommendations : Advice Add a Topic

Minimize

Minimize

Sticky Topics

Chronic Pain Support Group Edit Membership | Invite

General Discussions : Recommendations : Advice Add a Topic

Minimize

Minimize

Sticky Topics

How DailyStrength handles Abuse Rep... Posted by TeamDS 02/16/11

An Introduction to the Community Posted by TeamDS 02/16/11

Categories Topics Last Post Author

Fun And Games 98 You dont look like your in PAIN By stinkee 3 hours ago DailyStrength handles Abuse Rep... Posted by TeamDS 02/16/11

An Introduction to the Community Posted by TeamDS 02/16/11

Categories Topics Last Post Author

Fun And Games 98 You dont look like your in PAIN By stinkee 3 hours ago
How DailyStrength handles Abuse Rep... Posted by TeamDS 02/16/11

An Introduction to the Community Posted by TeamDS 02/16/11

Categories Topics Last Post Author

Fun And Games 98 You dont look like your in PAIN By stinkee 3 hours ago