Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
Tom30458
I am gonna copy and paste something from my Facebook wall now. Yep. When was the last time that I really woke up feeling as refreshed as I use to back in the day when I could sleep 6 hours and do better than I do on 8 hours now? OK. I won't be getting an answer, but I don't feel like I slept as much as I really did right now. Geez! Bummer! Some of the people on my friends list can relate. Some are chronic illness people as well. We are not proud to be, but it is Pain Awareness Month as well as Interstitial Cystitis Awareness Month. OK. Some of the chronic illness people on my friends list don't sleep good on many occasions due to the chronic pain and excessive urination, but I can get proper sleep on many nights.(and mornings) Oh, yeah! I did get up a couple of times; therefore, that would mean my sleep got broken up. That might mean I did not get quality sleep after all. I did have my blood checked, as in the whole panel, but I was told it was all good. I am not trying to complain at the moment, but I am trying to be honest and state that there is more to being an IC, and chronic pain, person than simply what is listed under symptoms. (because you don't see tiredness under IC symptoms)(or not being able to travel as good) (or not feeling normal) OK. Some IC patients are not doing all too bad while some don't feel like they have much of a life at times. By the way, I should be able to get on television and give a speech about chronic pain and IC because there would not be any corner cutting done by me. I would not dilute my speech any. Oh! I may never be cured in my lifetime at all. I hope so. My shoulders are still burning now. It is currently overcast, but I probably would be feeling the same if it was as nice as it was 24 hours ago. OK. I wish I was getting paid to vent some more. I could stand to have some more funds as well. bye...for now
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My IC is pretty well controlled on Elmiron, but I do occasionally flare when I eat something I shouldn't. It's a great drug isn't it?
I know that IC alone can cause chronic pain and there are people who are disabled by it. It's not a common diagnosis, but I think the disease is more common than people think.
Thanks for sharing this! Happy IC Month!
Sandy
I guess it is pretty pathetic (in a good sort of way) when we tell someone... Oh it is good to see that you have IC ...........
I hope you take this as I mean it as this just cracked me up. Where else can we say this?
I hope you get this and I hope Tom does too.
Tom, I am glad you posted your thoughts here.
My dear friend has this and it is an awful thing to have.
I have a friend with this too, besides Sandy :) and I know it to be miserable.
As far as being tired, chronic pain wears us all down! We aren't getting any younger either!
I'm lucky if I sleep 3-4 hrs a night/morning! Someone knock me upside the head with a frying pan please!
Hope you win the lottery!!!
haha! I just realized what I wrote. I am sorry you have IC, Tom, but it IS nice that someone else knows what I go through with it.
I know that you know what i meant!
Sandy
Thanks for being so chilled while being in so much pain.
x