Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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Bluebonnet08 07/25/2018

Does anyone else follow the research out of the Open Medicine Institute? https://www.omf.ngo/the-end-mecfs-project-2/

I am hopeful that they will find a cure & treatment!!

I am seeing a doctor from the institute right now. I am starting some bloodwork for tests. Right now he recommended methyl folate & methyl b-12. Has anyone else tried these two vitamins?

aussiedi 08/19/2018

Hi there lovely BB. I have been reading up on the methyl folate and methyl b12. An old friend just texted me yesterday to check it out also. Will give it some thought. I became so tired of trying things and became confused with it all so I stopped taking everything a few mths back.
I do admire your continual determination and you seem to be in contact with some updated practioners, so I like to keep my eye on you. Thanks for sharing and considering us all . I'm interested in hearing how you go, with the methyl folate and b12. Hugs.

BooPainter 08/20/2018

Yes I do, I give myself B12 shots once a month, and I don't feel great the same day but do feel a bit more energized after taking it. I don't know about methyl folate but I will look it up. Keep us posted.

Bluebonnet08 08/26/2018

Thanks - I'm still waiting on the test results. Now I've found that you shouldn't take these vitamins unless you find out that they are low. You can get a blood test for folate & B-12. I'll post on here how things turn out :)

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