Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
Hi,
I'm always talking about being respectful, gentle, treating myself with kindness and tact. I want to live these goals. I've been sick a very long time. It takes such a toll on the spirit. Education, good practitioners, nutrition, rest, exercise, self-care are all very important. (spokes of our wagon wheel) It is all a part of seeking the best and healthiest way to treat our bodies.
I want to live in a place of acceptance, not surrender. I want to give up thoughts and emotions (T&E) that are counter productive. For a long time I did battle, fought so hard. Then I began to learn ways to do things in degrees, to rest more and worry less. I am very isolated, do not have anyone in my home to balance me out. Whether it is task related or spirit related. I can get off balance, my wagon wheel spokes break and my wagon falls down.
Everything is so important, but when my spirit is low, my T&E levels spiral. The impact is much harder on the body. I feel so bad. Music, comedy, water, other practical tools like heating pads, ice packs, a massager to break up the knots, got a recliner, employ safety measures and so on...all of it helps.
I'm going through such a bad flare. Noise, light, the bed and the recliner hurt. My gait is off and I walk like a penguin as I navigate my home. The bottoms of my feet feel black and blue. I've had too many migraines. I have been directed to make an appt. to see a neurologist.
I try to think...I've been here before and I'll be here again, lean into this and ride it out as gently as you can. Keep your balance, do the best you can, pray and just breathe.
I am not helpless, but I feel that way. I am not defective, I am not the illness. I am not defeated. I am not useless. I am not a failure. Today it all feels like words, words, words. Who am I kidding, I keep saying, knock it off, turn off the tapes that wound and hurt.
I need to protect my spirit.
I'm always talking about being respectful, gentle, treating myself with kindness and tact. I want to live these goals. I've been sick a very long time. It takes such a toll on the spirit. Education, good practitioners, nutrition, rest, exercise, self-care are all very important. (spokes of our wagon wheel) It is all a part of seeking the best and healthiest way to treat our bodies.
I want to live in a place of acceptance, not surrender. I want to give up thoughts and emotions (T&E) that are counter productive. For a long time I did battle, fought so hard. Then I began to learn ways to do things in degrees, to rest more and worry less. I am very isolated, do not have anyone in my home to balance me out. Whether it is task related or spirit related. I can get off balance, my wagon wheel spokes break and my wagon falls down.
Everything is so important, but when my spirit is low, my T&E levels spiral. The impact is much harder on the body. I feel so bad. Music, comedy, water, other practical tools like heating pads, ice packs, a massager to break up the knots, got a recliner, employ safety measures and so on...all of it helps.
I'm going through such a bad flare. Noise, light, the bed and the recliner hurt. My gait is off and I walk like a penguin as I navigate my home. The bottoms of my feet feel black and blue. I've had too many migraines. I have been directed to make an appt. to see a neurologist.
I try to think...I've been here before and I'll be here again, lean into this and ride it out as gently as you can. Keep your balance, do the best you can, pray and just breathe.
I am not helpless, but I feel that way. I am not defective, I am not the illness. I am not defeated. I am not useless. I am not a failure. Today it all feels like words, words, words. Who am I kidding, I keep saying, knock it off, turn off the tapes that wound and hurt.
I need to protect my spirit.
Sometimes I just want to run away to spend some time by myself away from everything. If I could heal my spirit, maybe my body would heal too.
Having him here makes me more lonely and alone. Broken is a good word to describe how I feel. I would love to go somewhere and lie on the beach just to soak up the warmth. But, I have to get there and pay for it. Two things my husband controls. He's going to Florida for a long weekend and then in May he's going to California to go to baseball games with his brothers.
I'll be here in Vermont with my dogs.
Serce, that is so beautifully written. I need to copy it and read it several times a day...'cause of course it would take that many times to remember it..lol. The way to happiness lies within, I know that, and could easily find it when I could do for others. It's called Purpose.
Now I have no purpose in life...no friends...stuck in a house that's no longer a home...see no one other than my hubby who totally ignores me because it's easier since I no longer have anything to contribute to his life. Unfortunately, I AM defeated......and I despise feeling this way!
Whether one lives alone or not there are challenges. I am recalibrating my thoughts & emotions (T&E). I can't change others, but I can change me. It is not easy (for me) to break habits of a lifetime, but I am determined. I am claiming peace, joy and contentment. Letting go of what doesn't work makes room for these goals. My spirit is worth it.