Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
Hi folks
I note some of you have lived with this illness for a long time. Is it a condition which is likely to steadily get worse? Do your tests show degradation in key organs, muscle strength etc.?
From what I read CFS is a life sentence, just trying to figure out how bad its likely to get.
I note some of you have lived with this illness for a long time. Is it a condition which is likely to steadily get worse? Do your tests show degradation in key organs, muscle strength etc.?
From what I read CFS is a life sentence, just trying to figure out how bad its likely to get.
Meanwhile, our feelings of loss (of independence, vitality, identity) can create a state of hopelessness and helplessness, which may result in non-productive behaviors like over-eating, drinking, etc. Also, we may become less likely to ask for help from our family and our doctors. All of this can create a downward spiral. I've been down that spiral, for sure.
I believe that this disease is a brain-based condition, as well, so I wonder if my periodic cogntive "stalls," forgetfulness, and volatile mood swings will worsen or become more frequent as I hit my 60s in a few years.
Having said all that, I would describe my current situation as pretty good: I can work, socialize occasionally, do minor chores, pursue hobbies, and care for my pets. And I just got married! I realize I'm luckier than many who post here. Jeb
Regarding recovery, the research suggests that the longer a person suffers from the condition, the less likely they are to recover. People who are ill for 10 years or more almost never recover - this is borne out in the data. I don't know how long you have been ill but I've had it over 10 years and I know I will never be "normal" again. I have come to accept it, and in order to get by I use the "energy envelope" approach to things.
This article pertains to people suffering from chronic fatigue, not chronic fatigue SYNDROME patients.
Whole different ball game.
I refuse to believe I won't, and how I feel today compared to how I felt several years ago is like comparing night and day. Even if you become depressed (been there) or have other complications, keep your goal of getting completely better before your eyes the entire time.
Granted, this is all my own experience, so your mileage may vary. Also, scientists don't know exactly what causes it, so who knows exactly what increases or decreases your chances of recovery. Listen to your body and don't let anyone else (your doctors, family, this site) talk you into doing something you know is wrong for you.