No, not that particular organization, but there are tons of them out there touting "cures" for CFDIS/ME. There is no "cure" we all know it. They want money, pure and simple, and we are a vulnerable group of very sick people looking for answers. It truely makes me sick that big Pharma tries to make money off of us in any and every way they can.
I'm so glad you researched this before you spent any money. I can't begin to tell you the horror stories I've heard on this site about people loosing massive quanitites of money and time and energy on lies and "come ons" that do not nor ever will work.
Thanks for posting about this. So glad you didn't get caught up in this mess!

My family bought me four months of the 'program'. Sure it was going to cure me! My symptoms were worse each month on it and then I ended in the ER with terrible pains across my back and sternum. Doc said it was 'referred kidney pain', most likely from something viral. After a couple of weeks on a restricted diet, I felt much better overall. Tried to go back on the glyconutrient program and the pain started again immediately. Wasn't a virus, it was the Mannatech products. My other symptoms haven't been as terrible as when I was on the program, either.

This is MY experience. I'm not saying the products are bad and anyone else shouldn't take them. Different things work for different people. For ME, they did more harm than good.

Should also mention that when I try to go back to the multi-vitamin that I used for years before the glyconutrients, the pain came back again.

This was a year ago and I still can't take a multi-vitamin without getting kidney pain.

Thanks for the information!

Definitely have heard Mannatech are bad news. My son tried some of their stuff years ago, being pushed my some person out to make money, it did not harm him, but did not help either. You just have to be so careful, having this illness makes us so vulnerable. Some things do help for some people though so .... just have a good look first and go by what you read and your gut feelings.

I have had aperson trying to get me to buy into the glyconutrients too. I remember it was really expensive. I didn't do it. She pushed me really hard and she was a friend. I don't talk to her anymore.

Thanks for the infomation, there a LOT of people pushing this product in Tasmania. I stay away from most vitiams except those that are quite pure.

Mannatech is not the only company that makes glyconutients. I started taking them about 3 months ago. I only take the Ambatrose and I have gone from bed ridden to about 75%. I considered myself a lost cause. I don't believe it is a cure but I do believe that maybe in certain situations they can help. However I wouldn't bother taking any thing besides the Ambatrose, they are just a waste. I have also been taking something called d- ribose. I buy a $35.00 supply of it and it lasts about 2 months.

Nice to hear your experiance Somechic1980.
I came across some recipies for home made Glyconutrient powder and jam at http://www.burnoutsolutions.com.au/glyconutrients.htm
has anyone tried them?

I checked out that recipe, sounds a lot like what many of the critics of Mannatech's products spoke of. When I researched, I read a lot that the products were over priced and the nutrients could be gained from many inexpensive ingredients like the shitake mushrooms, aloe, honey and such.

Prob is, how many of us have the energy to go round up all these ingredients. I'm lucky to have toilet paper on hand!

Bottom line for me is to eat things that are good for me. Eat a varied diet. Eat as many raw, pure, and whole foods as possible.

If you have access to fresh meats, veggies, fruits, milk, honey, grains and such out there, take advantage as much as your dietary restrictions will allow.

I think it is very interesting that my son is allergic to milk but when he drinks fresh non-pasturized or homogenized milk, he has no problems with it. Same with wheat. When I grow and process it myself, he has no problems but otherwise it kicks up his allergies. The commercial processing must change the structure of the food in some way that his system doesn't tolerate.

You may be interested in the information from the Weston Price Foundation. I can get you links for any of that. My bro reads and studies all their research.

Good luck to you! I'd love to hear if you try out those recipes!

Yes I have thanks for that info appreciated...has been suggested to me numerous times

Hello Alistair..Yes i have made up that recipe from Dr Bird site I can,t say it made a significant or any manner of difference for me at all but I believe the ingredients are good....

I am leery of the above post. There is NO PREVIOUS HISTORY for "GRAYWLF10."

HMMMMMMMM. All of a sudden popped up as a member as of today at 2:08pm and has claimed to been using Mannatech for a year and been out of a wheelchair ..

I scream MARKETING and BULLSHIT!!! on this one!!

BUYER BEWARE!!!

Mannatech googled into DS on this one, All5air. DSers and other friends, beware. There is a devil afoot.

I am rather upset that someone that knows nothing about me can make claims that because of what I say means marketing and bullshit. Did you ever have faith that maybe what someone else says may be true. Just because I didn't join the group until today doesn't mean that I haven't been reading the posts. Rather rude if you ask me.

It's just that it has happened more often that not.

Please feel free to add more info -- especially historical info -- to your home page.

That would put a lot of us at ease.

It is just too easy for certain corporations to feed on those of us who are hurting and desperate after years and years of suffering for some respite to jump in and make empty promises.

You have to admit ... you popped out of nowhere.

If you truly are one of us and HAVE been in our situation you know what it is like ....

Feel free to record your history to your page; add your saga to your journal. I will be one of the first to befriend and support you.

I agree with you Tamara999. People will sell their souls to make a quick buck.
graywlf10 you can make the stuff yourself for under $50. gray wlf how much do you pay for your Manatech product every month. Do you realise that Manatechs days of operating in the USA are numbered. If mannatech product really worked Governments all around the world would be stampeeding to Texas as Chronic health issues cost the taxpayer Trillions per annum. I'm glad your well graywlf10 but dont try and BS us about a nutritional that conviently avoids all the FDA regulations and is distributed via a multy level marketing scam.
Its a get rich quick sceam if ever I have seen one.
Thanks Tamara999.
I'm glad your getting better graywlf10, if you can provide me with the science behind all Mannatech products then I'd listen. The thing is there is No sound science just a lot of Nobel prize winning science that has been misrepresented by gready people at Mannatech. I hope the Mannatech hyrachy end up in jaol.
Below is the sight for the same quality Glyconutrient powder and Jam recipe at a tiny $ amount.
http://www.burnoutsolutions.com.au/glyconutrients.htm

Below are the sights that identify Mannatechs methods as misleading.
http://www.raysahelian.com/glyconutrients.html
http://www.star-telegram.com/consumer_news/story/105633.html
http://www.oag.state.tx.us/oagnews/release.php?id=2086

Thanks Tamara999.
Ali5tair

YEA, ALL5TAIR!!!
YEA, DAILY STRENGTH!!
YEA, for the internet where we can stay informed!!!!

Again, IF you are real graywlf10, how about a little more info on your page? Let us know more about those over the counter medicines and pharmaceuticals you CLAIM were making you worse not better -- that is what this site is all about.

SHARING INFORMATION WITH ONE ANOTHER.

Please -- tell us:

which over the counter meds made you worse??

which pharmaceuticals made your worse??

PLEASE!!

If you are REALLY HERE TO HELP US!

I have faith ..........

graywlf10 ...... Here's your opportunity ....