Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
Take meds where you need them. I too have chronic depression (well actually BPD which more time on the depressive side than the manic). For the most part I can manage my depression through positive thinking, faith, meditation but I keep anti-depressants on hand for those times when the darkness is so deep is swallows all hope.
I too feel like my spirit is dying, but I will never stop fighting. There is a reason that this challenge is in our lives, there is a lesson to be learned a destiny to be fulfilled. I refuse to believe that this is random happenstance.
I have not mastered pacing yet, but I keep researching when I can. I believe that with management we can get better.
Big Hug..you are in a safe place.
I have been going through a time of boredom & a feeling of inadequacy so I am looking at the things I gave up to try to find somethings I can add to up my self esteem & give me some feelings of accomplishment. I can't go back to work or go back to gardening so those are out. I used to make jewelry & sell it at craft fairs but I burned myself out after I got sick but maybe making a few necklaces will help me. I am going to take up crocheting again. Can you find somethings to do to put you in a better place emotionally? Sounds like you are where i am.
How about a pet to take care of? I know for me my dog gives me so much pleasure & she is a good listener. She is an easy dog to take care of so I don't have to expend too much energy. She seems to know that I am sick.
I hope you find some happiness & know I understand exactly how you are feeling. Soft & gentle hugs, Denise
But when you have depression on top of the sadness associated with CFS/ME, it's truly too much to deal with sometimes, I'm absolutely sure.
I'm so glad you journaled about how absolutely desperate you are feeling today. It's good to talk about it, and let us help you through. You need to know that you are not alone!!! We ALL get the depression, severely at some times. Especially during a bad crash, when we are bedridden and feeling forgotten and alone. That's why I am so thankful for this site! We all know how you are feeling.
Please just try to realize that your life has value...to you and to others around you. You mean something to people who care about you. You are a part of this group of sufferers and you contribute to help make other people feel better. That is SUCH a good thing to do. It helps our depression when are able to help someone else.
I will pray that you will see through the dark maze that is today and that you will wake up tomorrow feeling much better. If you have meds for depression, please take them. I have an anxiety disorder. It messes me up. I take my meds, but in a crash, when I have a panic attack I want to jump out a window. I have no control over what's going on in my head. It's really scary. I understand how frightening this can be.
We're here for you, Pouty! We're fighting together to help each other get through the days that lie ahead. Tomorrow will be better.
I am praying for you!
All I have is my own experience. The demons of depression creep, like the slimy creeps they are, around our neck and proceed to choke all of the hope, love, and blessings from our days. For me the only help, I don't like drugs and I'm not that bad, is to pull those positives back into focus. The doctor who diagnosed CFS for me, also gave me my best prescription. Do less of what makes you worse and more of what makes you better. I gaze on what is beautiful, acknowledge the ugly and don't focus on it. I hold close what is comforting, like my two year old granddaughter. I deal with what is stressful as quickly as possible. I come on here and read honest words and put my honest thoughts and feelings out there.
I'm glad you have your blessings. I have mine too. I can't imagine life without them. I struggle, you struggle, and all of us struggle with what we can do. I loathe the idea of being lazy. Yet I have come to live a life I see as being lazy. I'm coping by not working too hard, but it still feels lazy. Then I wonder if I'm being lazier than I need to. Doing what we can is all we can do. Somethings are worth a bit more cost in the way of pain or fatigue.
I was going to say more, but my mind is fogging over. I checked my glasses, they aren't dirty. HUGS all around.
Yes, I am learning about meditation and gratitude, a new thing for me. But people know I am a very passionate eccentric person and if this is my experience, enough already, it doesn't work for me!
I pray that when I am better I can write and do stand up comedy about dealing with this crazy illness.
I found a cure.
I had jaw surgery.
it was my airway.
there is much research lately that shows that insomnia is sleep apnea.
sleep apnea causes intracranial hypertension, which causes the worsening headache and nausea when you lie down. look at the paper I posted on CFS and IIH. get a spinal tap and find out what is really wrong with you. get a sleep study.
intracranial pressure made me want to die, too. now I get to live.
Doxepin (Sinequan) made me sleep soundly and I came out of depression. The side effects are it makes one gain weight if taken in high doses, but I only needed a minimal dose to sleep and get undepressed. I'm glad I found it. It has been around for decades and has the lack of bad side effects would have been publicized, so I prefer it over newer meds.
I get it in oral (liquid) form and constantly adjust my dosage. Start with very little and increase. I am now taking a high dose for me, 40 mg, whereas a therapeutic dose for depression is minimal 75 mg. It stopped me from slitting my wrists and gave me good sleep. I usually take about 20 mg but my husband died and I increased to 40 mg and am now tapering down to 20.
Maybe the old wisdom is worth something...the CFS cocktail.
Good luck
PS: for women: I went through menopause with no hot flashes or anything bad. My doc said it was so easy because of the doxepin. Also 2 different docs told me it was good for my immune system.
I've spent so much time and money on drugs, supplements, doctors, diets, and it just seems I end up in the same place. It can make one despondent. As a guy, I feel ashamed of having this because I think many people just see me as weak willed. I tell almost no one about my issues, as I usually get stupid responses of people thinking that solution is right there for me if I'll just listen to their advice.
Are you feeling better since you posted this, I hope?