Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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/ Chronic Fatigue Syndrome Support Group

How do you cope?

Nixie319
Nixie319
I havent been officially diagnosed with Chronic Fatigue Syndrome but I have Fibromyalgia and the fatigue I experience is frighteningly debilitating. I can be house-bound for a week or more, feeling too weak to hold myself up that its difficult just to walk from one room to the other. When I do have a day or two of wellness, running an errand or completing some light chores can leave me helpless and feeling sedated for days.

When you go through these periods of weakness, how do you cope?

What do you do to occupy yourself?

Does anything relieve the fatigue or weakness, or help you to function?
energylost
energylost
I am hoping that everyone here find a remedy that works for them. If you don't find one at this time, keep searching, there is one out there that fits you. Keep searching for an m.d, an Endo, a naturopath, even a pharmacist. I got help when I went to a compounding pharmacy for hormones; she is comparable to a naturopath. She did more for me than an m.d.
deleted_user
deleted_user
Hi there! So sorry you are struggling with this. I have had CFS for a year. I was basically bedridden a few months ago and I have had my ups and downs.

I know what you mean about the weakness. I used to love surfing and dancing. I went from that to having trouble carrying an empty pot or pan.

A series of things have helped me improve: Vitamin D, Magnesium, B12, yoga, A LOT of stress relief exercises with a therapist, etc.

I actually just started a Facebook page and youtube channel on how to cope with CFS. If you have time, please join and take a look! On the youtube channel, I'm going to be doing a series of videos specifically on "how to cope" and the facebook page is a support group.

https://www.facebook.com/CFS.Hope.and.Healing
https://www.youtube.com/channel/UCRlBMCeP8fBSK6N2lv2docg

I hope you feel better! All in all, everything can be exhausting with CFS. I have found light yoga to be the best way to keep some of my strength.
mywellness59
mywellness59
I am finding acupuncture to be very helpful. Also massage. They are both expensive but my acupunturist gives me a 50% discount and I can get a 20 minute chair massage for $20 and feel brand new!
evildoer
evildoer
I watch a lot of tv this last bought of fatigue. Usually marathon a series while laying on the couch.
hollie9
hollie9
How long have you been feeling exhausted? Did you just recently get diagnosed with FM?

When I first caught this 20 years ago I felt like you describe. I didn't realize I was still doing too much and ended up bedridden. After about 3 years feeling really bad I gradually came out of the woods, not cured but able to do more with no more pain. I do think this happens to many especially if you learn to pace.

During periods of weakness I cannot cook, to tired. So hopefully have food I can eat without cooking and watch TV or computer.

When I first got sick years ago, a CFS person told me to get the "CFS cocktail" which is doxepin and klonopin. Doxepin gives restful sleep, klonopin gets rid of the neurological symptoms. Worked for me.