Caregivers Support Group

A voluntary caregiver is a spouse, relative, friend or neighbor of a disabled person or child who assists with activities of daily living and assists those unable to fully take care of themselves. The challenges of a caregiver are unique and sometimes it's hard to find people to talk to who know what you're going through. Join the conversation and find others who...

933 Members
2,583 Posts
0 Online
Personal Challenges
/ Caregivers Support Group

Daughter in Tears! Help!

ruthgrps
ruthgrps

Tomorrow the 1 june is my daughters 10th year anniversary of her heart transplant.  Last night she was in tears, she is feeling really upset about it.  She was saying things like I cant be the firsit to die, the thing is hearts are only meant to last 10 years and then after that you are on borrowed time so to speak.  A lot of people dont understand, that having a transplant isnt the end of the problem but the begining, she has been on medication since she was first diagnosed with dilated cardiac myopathy at 3 months old.  She is now 22 years nearly 23 in fact, we usually take her away for her anniversary it takes her mind of it, but, this time we just cant afford it.  I am finding things harder to cope with as I get older.

Tired
Tired
Can't they put a pacemaker in? Or put her on medication for
people with heart failure that might prolong her life?
She should see a counselor to deal with her feelings if at
all possible. Maybe also write her feelings down in a journal.
Mersy
Mersy
I am so sorry your daughter is going through this. I know its also hard on you. Unfortunately, I have had the opportunity to know a 12 year old neighbor who had heart transplant at Loma Linda University. Please know that you are in my thoughts.
strongandsilent
strongandsilent
So sorry you are going thru this. Your gut must be in knots all the time. Worry for you daughter... and worry about her anxiety too. Sending you strength and good vibes
Greenteam
Greenteam
Hello. I can only imagine what your going through. I live it every day through my job. I know so many parents like yourself that are taking care of their children instead of putting them in a group homes. How are you doing? Taking care of your daughter and coping with everyday life. Highs and lows. Bless you and God help you. Contact me anytime you need to talk.
Ghostwolf04
Ghostwolf04
I had no idea this happens with transplants. I thought once you had one you were gtg. Can she not get another heart when this one wears out? Or a robotic heart? I'm sure they need volunteers to test those.
Posts You May Be Interested In
  • MelT2020

    $87 coffee!!!

    Posted by: MelT2020
    Last Reply: Tired
    2
    ((I tried to post this in one of my journals...but DS kept giving me an error message)))Decided to venture to Detroit. I rarely get to this side of the state since my father was murdered on the east side about 41 years ago. My mom and I rarely went to this side, but I recall she visited the Sommset (www.thesomersetcollection.com/) mall with one of her friends a few years ago. She talked about the...
  • TES9579

    Random Question Of The Week - 9/27/2026

    Posted by: TES9579
    Last Reply: Tired
    7
    Do you like being the center of attention?