I know what you mean! Whenever I check this group there is nothing new going on and no one chatting! =(

well, here we are! if there are two then that means we are not alone! right?

I just joined this group looking for other friends to chat to...oh well
I have CFS/ME and am in bed alot of the time.
It is a very lonely and isolating.
so friend me if you would like to chat.
Thanks Colleen

I spent two years bedridden with a Chronic Fatigue Syndrome relapse. I'm still not very active, but I'm able to be up and about for 3-5 hours a day (not always consecutively). I was prepared, however, to have to adjust to living life horizontally--and determined that i could have a meaningful, productive, even joyful life somehow. This doesn't seem like a very active group, but if anyone would like to know more about me or my story, I'm willing to share. Hugs.

please share, i am interested. pain is keeping me more and more in bed and i am struggling to feel of use.

Hey guys, I am new to this group. My name is Matt and I am 22. I was born with a disease called Proteus Syndrome that causes me to grow untreatable tumors all throughout my body. I could get around just fine until I broke my leg at the age of 10. After that I was permanently bound to a wheelchair. However, as the years went on the tumors grew larger and larger, making it hard to sit up in my chair. This finally led to me being completely bedridden for the past 6 years now. Being bedridden is such a tough way to live. I agree with you Colleen. It is indeed very isolating and lonely. How do you all cope? I am so unhappy the majority of the time. I'm sorry for complaining so much, I'm just having such a rough night.

Welcome new friends....
I am mostly bedridden with getting up for short periods of time...
I spend my time reading, watching tv, playing games on my laptop, or researching things.
I love to chat with friends on DS or Facebook.
My newest craze is ....dont laugh.....
I like to color in my coloring book...lol
Brings back great memories!
I also color with my grandson, he is 2 yrs old.
I have had CFS for 2 yrs now.
I am better than I was the first year but wont ever be like I was before my illness.
We all must come to terms with this in our own way.
It helps me to know I am not alone in my illness.
There are so many people much worse off than I so I shouldnt complain.
Gentle hugs to you all.

I too spend my time reading, watching tv, and playing games. Talking with people online is the only way I get social interaction so thank god for the internet lol. It's a little comforting knowing I'm not alone in how I have to live, but at the same time I wish no one else had to live this way.

I feel the same way Matt....
Did you see that I live in Indiana also?

Yes, I saw that. That's pretty cool. :)

Man, I really do wish this group was more active. This is such a lonely lifestyle and I wish others were around here to talk to that can relate.

Guess we're all a bunch of sleepy heads.

I wish I was a sleepy head. For being in a bed 24/7 I sure don't get much sleep. lol

when i have trouble sleeping i have a lavender spray that i spray on the sheets and pillows and it helps to calm me and works really good to soothe me into sleep.

also i start daydreaming about something pleasant like something i would like to be doing and get really involved in it like i am watching a movie in where i am the lead actor. (it isn't an action movie either lol that would defeat the purpose) but doing some calming activity like fishing beside a quiet stream. it relaxes me and turns off my mind to more troubling things and i drift off to sleep. this serves two purposes it helps me calm my mind so i can sleep but it also makes my first dreams very pleasurable.

Matt you might want to try this and see how it works. i swear by lavender as well, it really works!

I'd be thrilled to chat with others on bed rest! I spent about 2 yrs. barely getting out of bed, so I know all too well the feelings of loneliness, frustration, boredom, etc. I'm slowly, very slowly recovering from whatever happened to me, so I'd be thrilled to chat with others. One way we can all chat together is to add each other as friends and set aside some times to chat. Please feel free to add me as a friend :)