Atrial Fibrillation (AFib) Support Group
Atrial fibrillation (AF or afib) is an abnormal heart rhythm (cardiac arrhythmia) which involves the two small, upper heart chambers (the atria). Heart beats in a normal heart begin after electricity generated in the atria by the sinoatrial node spread through the heart and cause contraction of the heart muscle and pumping of blood.
Most importantly.. afib can be managed and you can live a normal lifespan IF you get it treated as early as possible. Anticoagulants (blood thinners) are an important part of that treatment. Ask your doctor why only baby aspirin and not 325 aspirin or blood thinners.
My "doctor" did not allow me to ask questions. I don't think I'll be referred to any specialty. He is a GP, and so I kind of feel at a loss regarding this. Even in the hospital they never did call a cardio doc. Only saw the ER doc and the internal doctor. We asked for a social worker many times, even called and never heard back. Which is probably part of my panic.
Will see what this blood test I got this a.m. will show. I was told it was a blood panel, but the girl didn't seem sure, she couldn't even find the vein properly which is not usually a problem with me.
I do see there are specialists in the area, scripps, la jolla, san diego etc. but I only was in my local hospital.
I saw that on the specialist locator.
I don't really know how high my heartrate was, it was bad. There was one nurse in the ER who spent some time working with me, calming me, telling me that he lived with it. Wish I'd been a bit more aware to talk with him.
I do work at relaxing. Like, watching netflix. I don't think I've sat down and watched tv in over ten years or more. Not usually a sitdown kind of person, so this relaxing thing is a bit foreign. Plus, just in case they find my blood sugar out of whack I've already worked at converting my foods. I already only use whole grain foods and have no packaged foods in my home, except maybe an annies mac & cheese once every third month. My main concern was just trying to eat on a more regular schedule. Not eating too late since I think that may be one of the triggers.
You all are offering great help for me, even if I can't use it this day, I will the next. One day at a time. Just wish those around me could understand, I don't think they are quite getting it yet. Usually a cold every six to eight years. So, they aren't used to me not holding my own so to speak. Guess they'll have to.
thank you all, you are all making me feel that this is something I can work hard to overcome.
jill
This is a great place for info and support. You've already been given some great information. I want to caution you that the advice you receive here is based on that person's experiences. Not everyone with a fib needs to be on coumadin. Aspirin may be fine. It is dependent on several factors such as age, gender, other disease such as high blood pressure or other heart disease. I take 325mg of aspirin daily on the advice of both my cardiologist and my EP. Every case is individual. A fib also varies alot from person to person. What is a trigger for me may not be for you. Some of us are in a fib all the time and some only have occasional episodes. I think someone mentioned cardioversion, but you said that you are in NSR now. You don't need to worry about cardioversion since you converted without it.
I work in a community health center and I am very proud of the care that we provide. Our Drs are excellent, we refer to specialists and many of the local specialists are willing to work with our uninsured patients and provide care on a reduced fee based on income. We also help our patients obtain needed medications. For anyone who is uninsured....look for a federally qualified health center. They provide many services.
The best things you can do for yourself right now are to avoid the things that are common triggers like caffeine, any stimulant type meds (OTC cold meds, diet pills, etc) chocolate, alcohol, sugar, cut back on salt. Avoid large meals and get plenty of sleep. Do something to help reduce stress....take a walk, deep breathing, meditation, laugh at a funny TV show, etc.
Having a problem with your heart is very scary, but the good news is that a fib is something that can be controlled and you can live a normal lifespan with. Take care
I hope things improve for you.
Marikay's last post is really worth re-reading. Her major points were:
1) No 2 patients are exactly alike and your doctor assesses stroke risk based on alot of factors... no aspirin, baby aspirin, full strength aspirin, coumadin (warfarin), Pradaxa, or whatever.
2) Apparently, financial and Government help is available. I know nothing about this, but it almost seems like we should start a new topic just on that since there have been a flurry of new posts of uninsured afibbers. The only thing I know is that all the bllod thinners above (except Pradaxa) cost almost nothing and Pradaxa has a saver card that you can get to reduce the cost for 12 months to $30 per month.
3) Do whatever it takes to treat yourself well and identify what triggers you have.
Good luck.
R2D2
again thank you for your replies. One part of me doesn't want to hear a thing, I just want this to go away. I had a horrible day yesterday so I didn't reply. I did read all your replies coming in.
Listening to my family arguing made it bad. Then my husband started thinking he was having afib, think it was more like panic and he shut down. Thank god since he just wouldn't shut up. When I told him I was feeling bad he said fine, do whatever you want let me know how it turns out. He emptied out the bedroom to fix the carpet and then bailed out. Hopefully he'll be able to finish that today.
One hard thing is while I ate oatmeal, they ate fancy peppered bacon, my daughter went out and bought disgusting cookies and crackers etc. I'm still working on a diet plan for myself. Basically what I was already doing, minus the coffee and any sugar, and more veggies.
I tried to find childcare for the little guy.
No word yet from Kaiser.
I will hope everyone will be calmer today.
jill