Antiphospholipid Syndrome Support Group

Antiphospholipid syndrome (or antiphospholipid antibody syndrome) is a disorder of coagulation which causes thrombosis in both arteries and veins, as well as recurrent miscarriage. It is due to the autoimmune production of antibodies against cell membrane constituents. A very rare form is the catastrophic antiphospholipid syndrome, in which there is rapid organ dysfunction and failure.

0 Online
  • Montana1991

    Multiple immune disorders

    1
    Hi, new to this sight just wondering how many of you have multiple immune disorders. Seems like mine likes to morph into something more while keeping the first. Very frustrating,tiring and difficult. Started with Alopecia then Hashimoto’s, Aps and now Sojerns and possibly Lupus. Rheumatologist said this sometime happens. Anyone else??
  • geneticla

    Ce1502

    2
    I was just in the hospital for a week for my second time in 7 years. The first time I was in for 10 days.  I have L.A. and will most likely be on Coumadin for life.  Eliquis can work for LA but has not been approved by FDA for that specific blood condition, yet.  For me Coumadin is my best friend now, and hematologist will explore more options and meds in the future.  I just got out of...
  • 4andnomore

    APS

    1
    How many persons have successful pregnancy story with aps ? Could you please share it will be highly appreciated. 
  • BuckeyeFan

    Living with APS

    1
    Living with Antiphospholipid syndrome can really test your mental resolve and fortitude. I have had several episodes of blood clots since 2009. A DVT, a stroke, several mini TIAs, blood clots in kidneys and spleed and growth on 2 heart valves. It has been very traumatic to say the least and all I can do is hope that there is a future cure for the disease out there. I am glad to have found this...
  • MomOfAPSkid

    Children with APS

    1
    Is there anyone in here with a child who has Antiphospholipid Antibody Syndrome? My daughter was diagnosed at age 10. Now she's almost 12. It would just be nice to talk to someone who understands. 
  • Dmeeseeks

    Without hope after another defeat

    2
    Yesterday I lost another pregnancy of multiples to antiphospholipid antibody syndrome. Out of 5 pregnancies I should have 7 children but I only have 1 living child because of this curse. I thought I was use to it but I feel a little piece of me die every time and I'm spiraling into a deep depression.  I want more children but apparently my body says otherwise. Signed,Tainted fertile ground
  • heffaywrit

    Newly diagnosed with LA

    0
    After a major saddle PE that required emergency surgery, a blood doctor performed tests and informed me I have lupus anticoagulant, but not lupus. It was a frustrating appointment. He was an hour late for the appointment and then he spent five minutes telling me this news. I am meeting with another hemotologist next week for a second opinion -- not so much to validate the LA diagnosis as to find...
  • ce1502

    Newer anticoagulants?

    3
    After having a pe, I will be retested for lupus anticoagulant in a few months. Ive been on eliquis since it happened, and I'm worried that if I do have aps that eliquis won't work?? Does anyone here take any of the newer bloodthinners?Thanks for your help.
  • 4andnomore

    Aps

    0
    How long does it take to get your first Antiphospholipid antibody test results?
  • Hi all, I was diagnosed with antiphospholipid syndrome 13 years ago.  I had 3 miscarriages before they would even test me for any problems.  This has always made me so angry, wasn't it bad enough to lose one baby! After, during and since multiple miscarriages I had three successful pregnancies and have three wonderful, precious children.  Daily heparin injections and monthly scans were so...
  • rcykb1

    new diagnosis

    0
    Hi Everyone,i was recently was diagnosed with aps after having a full immunology workup performed duirng an inpatient treatment to try to stabalize a secondary condition. I have no vascular history other than varicose veins for which i wear compression stockings. The doctors put me on Clixan for five days thinking that it might help stabalize me but it had no effect so they took me off of it...
  • Bayarea415

    Just dx on May.25,2016

    0
    Hey everyone im new here an am recently diagnosed...i have done a lot of research and im clear on a lot aspects pertaining to this disease...but i think im dealing with a unique aspect when it comes to this disease and what meds are allowed and not allowed...for ie: certain antibiotics and hormones ect.... So now to my issue of focus...i got my period at a decent age but the older i got it slowly...
  • sraoldenkamp

    JUST DIAGNOSED

    2
    Hi Everybody: I was diagnosed yesterday and I am still trying to process all this. After a visit to the eye Dr where he saw blood in the back of my eye and sent me to a retinal Specialist. The RS diagnosed me with Brach Retinal Vein Occlusion and told me to go see a Hematologist. After blood test and sonograms in my arms and legs blot clots where found in my arms. I was put in Eliquis. I still...
  • sraoldenkamp

    NEW

    0
    Hi Everybody:I was diagnosed yesterday and I am still trying to process all this.After a visit to the eye Dr where he saw blood in the back of my eye and sent me to a retinal Specialist. The RS diagnosed me with Brach Retinal Vein Occlusion and told me to go see a Hematologist. After blood test and sonograms in my arms and legs blot clots where found in my arms.I was put in Eliquis. I still have...
  • labba26

    Separation anxiety

    0
    Hi all! Looking for some guidance my fiance is going away next weekend still in the same state a little over two hours away. I'm so anxious that he'll get hurt or die and I'll never see him again. This is also the first time I'll be staying alone in our house and sleeping without him. I actually have plans with my friends both days he is gone but looking for ways to stop worrying about his...