say away!!!! we hear you, we think the same things/worse lol!

can you guys get out for a short ride every day...we try to do that...it helps...

Ron likes to be entertained...but as I said to someone I'm just not up to being a lido deck entertainer!

I wish that you had a way to escape everyonce in a while.

If my wife is any indication, it will get better.

That's what my husband says, " what are we going to do today". He used to say that everyday, but lately he just wants to lounge around most of the day.

These are the kind of "quotes" you want to put in your chapter! HONESTY< REAL FEELINGS. Feelings only another caregiver can understand....then our sisters who come after us won't feel so guilty when they feel it. That why this book is written by "CAREGIVERS". If (or should I say when )we are successful then we can go into other areas possibly including comments from Alzheimer patients or whatever. But for now it is for Caregivers by Caregivers sharing our ideas and experience with love:)
Thats how we can really help them:) Remember its anonymous!!!!! Has to be.

we'll have to wear masks when we get on Oprah!

how about a line of T shirts and maybe cards with quotes from the book to send ti 'sisters'...ok i'm so excited i'm ahead of myself, chapter first, but damn it feels good to think about these things!

Mother was put on Serequel to stop her obsessiveness questioning every minute of the hour. It was miracle! Of course, she's 90 years old and the AD has sped up the aging process by leaps and bounds. I can't imagine what she'd be like if she were younger and more energetic.

We would walk the dogs, go to the mall and walk and I'd have her exercising with me.... damn.... I'd have her so tired she couldn't move.

Oh Deb, you made me laugh at the title and post. I have so many days that I get so grumpy at having to do EVERYTHING. I had to go out for a car repair yesterday. My mom is fine left alone a few hours, for now any way. I stopped by to visit a few friends, a short hello, and realized how socially isolated I am. And knowing it will get worse.

My mom refuses to move her butt off her chair, staring at the tv all day long. She never was active and is darn pleased with herself just sitting now. I am sucked into this because if I can't get her up and out, neither do I get out. I was always active and not am inside, home, listening to her tv with the only activity focused around meals. Ah, I miss my life.

What can we say? At least we have friends and support here!
Hope you are better today.

Linda...try to take any brief little trips out that you can while you can. Its been about a year since that stopped for me and I really miss it. Can't even run to the drugstore alone...so trust me do it even if its just an hour or two as the time will come when you can't leave her anymore. Sherri

I had grumpy days, pity party days, resentful days.
Now I'm having reflective days.
Does Alzheimer's ever leave us ?

Yes, Linda, do try to get out any chance you can because soon you will not be able to go ANY alone, not even the mail box.

Judy, I suspect that no ALZ will always be a little shadow in our lives.

Judy..I don't think it could ever leave us when we are or have been totally submersed in it day and night .....BUT...in your case particularly you can look back and say "WOW I did it all the way and with love!" I pray I can mirror your dignity and strength.

Does it ever leave us? My mother's mother had this disease and died at 102 yrs old in a nursing home from it. My father had it and died in a nursing home in 2001 at 83 yrs old (I was his caregiver along with my mom). And my mother has it and she's now 90, still at home with me. How far away from this can I get? I'm 62 and am glad I had a wild and wonderful youth to look back on. I hope by the time I no longer am a caregiver I'll still have the ability to enjoy life.

Wow, pity party today! Grumpy me was yesterday! So glad we are all here together. I'm normal!

yup...

as the neuropsychologist who was testing Ron back in 06 said to me
'If you weren't depressed you'd be crazy!"....

I have felt this was one of the kindest things ever said to me in this funny life/mess by a medical person.....

Ok, you passed on the grumpy pill...I have had a week of grump and I think I can't stop it. Wow, it builds on itself, doesn't it? Grump Grump.

I've been dealing with plans for in case of emergency for my mom and realizing if you have money life flows and if you don't, yet don't quite qualify for Medicaid, you are stuck with no help for anything. I am paying the price for my parents financial disaster when my dad's Alzheimer's was really bad and he spent all their money. I've gained 7 pounds - I was fat enough, this is terrible. The condo insurance went up 55%. The property value went down yet taxes increased. Maria Shriver articles are driving me crazy. Mom is constipated. The cat hair is taking over the house. Grump Grump.

De has given us all a great new Title...The Grumps!! i am feeling grumpy today also....hear you on the $$$ money angle too this suck disease steals our lives and our mohey!! c'mon give us a break..we try and try and try..... One minute I look at him and feel sad, then mad, then empathy , then mad I think I am ready for the nut house sometimes . Just when something lifts me UP something else in this awful disease tears me back down. Thats one of the worse things about Alzheimers you have no clue as to whats next????!!!! I honestly would lose it completely without you guys and this site......hope next time I sign on I am a nicer person. Sorry :(