Alzheimer's Disease Support Group
Alzheimer's disease (AD) is the most common cause of dementia and characterized by progressive cognitive deterioration with declining activities of daily living and neuropsychiatric symptoms or behavioral changes. An early symptom is memory loss (amnesia), usually manifesting as minor forgetfulness that becomes pronounced with illness progression, with relative...
You may be wearing yourself out with so many visits. I understand how you feel, though. It is hard to leave them.. we feel like we have abandoned them. But you have not.
You need to get yourself in a good place. Maybe take a whole day off and recharge yourself.
Prayers and blessings coming your way.
I actually took part of yesterday off to go to a fundraising luncheon for the nursing home. It was nice but I was having a hard time staing focused and not talking about my husband.. When i got to the nursing home he had not been changed. When I went to do it he went ballistic and I'm afraid I didn't handle it at all well. It was just before dinner and I could not expect the staff to do it as they are busy getting people into the dining room. He woud lhave gone in very smelly if I had not been there.
This is so hard, I can barely face the thought of going in today.
You might try visiting every other day and taking a day for yourself to do whatever or nothing.
This will make your visits more enjoyable and I think he will be a lot less agitated when you visit.
I wish, with all my heart, that I could do this with my love, but it ain't gonna happen.
Hang in there
Hugs
Mary
I don't know if any of this made a difference in her health but I do believe it is important to let the staff do their job. You need to monitor them to make sure that they are giving the proper care but they know how to do things like moving them safely. I also think that letting the staff take care of them preserves some personal space which may let you enjoy more time as a couple instead of as a caretaker/patient.
When my MIL was in the hospital I also witnessed many people breaking the visiting hours rules. My husbands family was horrible with this. My feeling is that a hospital is for healing not visiting. While a nursing home is different it is very difficult for the patient to see people leaving all the time. I think it just reinforces the fact that they cannot leave. It is similar to a child when you put them in for a nap. If they cry and you keep going back you just prolong the upset. Each time you check on them it's like starting over.
Not sure if this makes any sense. The best person to talk to is the head nurse. And trust that she has the most experience.
I would just visit at different times on different days just to make sure you are happy with care he is being given. If you find him soiled frequently or have any other issues then I would talk to a supervisor. Once they know that you are an active advocate for your hubby he will most likely get increased attention.
I hope you will take the opportunity to be kind to yourself and get some much deserved rest......hugs and prayers.....Jeanmarie
I agree with Mary , you must be paying a fortune to have him there and maybe ease up on yourself a bit and let them do their job. If you are still going to do everything he might as well be at home. Give yourself a little breaksince you have the opportunity to do so since he is there. I think its probably much like leaving a child in daycare, its sometimes harder to separate for Mommy than the child.
God bless, good luck and I pray you find a happy medium for you both. Hugs Sherri
Bless you for all your tlc. Now give some to yourself. Hugs.
Today was a better day as he had a male staff who is just great with him. I wish he had him all the time.
Tomorrow morning I go to an activity that i enjoy.
I know I have to take care of myself because my 90 year old mom deserves some of my time too. She is getting more frail and I should be with her a lot more. It's not easy.
I agree with everyone else. Once a day is plenty! Give yourself permission to even skip a day or two now and again.
There is no way I'm going to skip a day as yet unless I absolutely have to. I always check on the catheter right away. One day the urine bag had been put in upside down which is bad as the urine can flow back up.
I'm trying to hang in until the end of the month and I promised myself if things are no better I will take him home. I hope I don't have to do that because I know I won't manage for long without the supports I had built in before and which won't be available.
I have to stop moaning and get on with things.
By the way, I'm in Canada and I'm sure our system is quite different from that in the States where most of you seem to be from.
I do hear that health care is so different in Canada than here in the US..Actually speaking to a Canadian do you mind my asking what are the main differences?
I love Canada , we have been many many times when my husband was well. Its so beautiful and has so much to offer.
If you have nothing but your pension you have to have a shared room and apply for a sudisidy but if you can afford it you can have a private room which costs us $2,200 amonth. Of course the waiting lists for private rooms are much shorter.
That is not to say that our homes are wonderful. The ration of staff to resident where my husband resides is 1 to 8 and it is considered one of the better homes. The staff is stretched to their limits and apprecitate any help the family can give.
In addition to these homes we have private homes which cost about $ 6,000 a month and are ouf of reach for most of us.
We pay $2.00 for a prescription as seniors are automatically covered by the health care system.
I don't know if this answers your question.
to weeks is still a short time for such a major transition...would it help to talk with his "team" get their input as to what is working, what is not, possible solutions?
and it is truly important for you to get some rest.....