Addison's Disease Support Group
Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It occurs when the adrenal glands, seated above the kidneys, fail to produce enough of the hormone cortisol and, sometimes, the hormone aldosterone
Hi,
Last night when I went to bed, my legs begand hurting. They ended up hurting all night lone, from my upper thighs to the backs of my knees, and somewhat in my calves. I stayed awake until 6:00 a.m., until I was able to take some naps.
Today, it left me for an hour or so, and I was able to do some kitchen work, and as soon as I put my feet up to rest, the pain came back. I even got a hard, sharp pain in the back of my upper thigh. In a nutshell, it feels like I have two turniqettes (sp!) on my upper thighs, holding the blood trapped in my legs. I'm pretty worried, and the reason I'm posting about it here, is that I just had some toes cramp up, and so wondered if this could be a symptom of something out of balance.
Before bed, I had a mug of natural bullion, which was very salty, but that never bothers me.
Thanks for any input you might have. One thing I know is bad that I do, is to spend too much time on the laptop, and I often hold it on my thighs..and it'a s heavy one. So, probably not Add's related, but I did wonder...
Last night when I went to bed, my legs begand hurting. They ended up hurting all night lone, from my upper thighs to the backs of my knees, and somewhat in my calves. I stayed awake until 6:00 a.m., until I was able to take some naps.
Today, it left me for an hour or so, and I was able to do some kitchen work, and as soon as I put my feet up to rest, the pain came back. I even got a hard, sharp pain in the back of my upper thigh. In a nutshell, it feels like I have two turniqettes (sp!) on my upper thighs, holding the blood trapped in my legs. I'm pretty worried, and the reason I'm posting about it here, is that I just had some toes cramp up, and so wondered if this could be a symptom of something out of balance.
Before bed, I had a mug of natural bullion, which was very salty, but that never bothers me.
Thanks for any input you might have. One thing I know is bad that I do, is to spend too much time on the laptop, and I often hold it on my thighs..and it'a s heavy one. So, probably not Add's related, but I did wonder...
JudithPoodith
Please excuse the typos!! I'm in a lot of pain,
JudithPoodith
Please excuse the typos! I'm in a lot of pain.
deleted_user
I don't need a lot of pain to make typos!!I have ben getting terrible leg cramps at night but I thoght it was because of A/C. Seems whenever I am in A/C for a while, my legs will get cramps at night. Or maybe because I did not have an organic banana 5this AM.
KRM1985
My husband has Addison's and he complains on and off about leg pain, being stiff or sore. The doctor didn't say too much about it when he went the last time and everything came back good in his bloodwork. I think it might just be a part of the disease and my husband believes so as well. He never experienced leg pain until the Addison's kicked in and it seems to come and go at various points regardless of diet, exercise, and other physical activities. I hope you feel better and are able to manage some of the discomfort and pain!
Latrece
I was just diagnosed 2 months ago with adrenal insufficiency. During my last doctor's in April he told me it was Addison. Before the medicine (hydrocortosome), I use to have bad leg cramps all throughout the day. I could not stand and it was hard for me to walk. At night, my leg also hurt. The pain started in my thigh and move down my leg. I never told this doctor about the pain, but I did tell him about my muscle and joins pains. I don't know about you, but I am a little scared about all this. I never been sick with anything. I understand that this is a rare disease {1 out 100,000).
deleted_user
I work in the medical field as well as having several problems myself. If you are having leg cramps typically you have an electrolyte imbalance and since you have Addison's the most common imbalance is low sodium. One thing to watch out for with Addison's is you will flush your sodium and retain potassium so be careful drinking gatorade or eating too much fruit high in potassium. As for the cramps I still had them after getting diagnosed with Addison's but I researched and found that it is very common to have an aldosterone imbalance as well and the treatment for that is florinef or gen. fludrocortisone. Since I have started this treatment I seldom cramp and don't crave salt the way that I used to.
deleted_user
I constantly have leg pain and arm pain as well on the same side of my body most of the time. i have had Addison's for 9 years and the pain just started abput a year and 1/2 ago. It feels so aching like the muscles are soar and it comes whenever. Readin the last reply from Chancy03 I am very interested to hear more form you. I have been known to skip out on my florinef. This pain just really worries me. I get to the point where i start thinking that my whole body will ache like this one day and by the time I am in my 60's i will be in a wheel chair. so scarey to think of. if anyone has any advice on what to do please help ;0
deleted_user
my legs, particularly the backs of my legs (only) hurt horribly most of the time. i do not have pain anywhere else in my body. i have been diagnosed officially with primary Addison's disease for 3 years. i had severe leg pain for 2 years prior. Getting a diagnosis of Addison's, thought horrible and "forever", was very validating for me. i had suffered so very horribly to that point with a very unsympathetic doctor who refused to treat my symptoms b/c he did not know a "diagnosis". Chronic pain makes you DEPRESSED and it is so hard to go on living. NOW--- after a major addisonian crisis that nearly cost me my life, i got an official diagnosis. i have a new internist, (and even prior to that crisis and diagnosis) he believed the best about me, SAW how much pain i was in, and came up with a treatment plan. i love him! he gave me my life back. i am a momma to many and i did not want to keep living with such pain. i take hydrocortisone AND florinef daily and life got so much better for me after that. but i still deal with (sometimes still) HORRIBLE leg pain. So, we have a treatment plan involving pain medication as baseline, and then breakthrough. i also got a handicapped hangtag for my car, for the days where it is just too bad to work. i do not like to think of myself as disabled, though clearly i am. but if this is "chronic" and forever, it HAS to be managable. i truly praise God for such an internist. My endo is kind and a great medical doc, but it is my internist that gave me my life back.
deleted_user
my legs, particularly the backs of my legs (only) hurt horribly most of the time. i do not have pain anywhere else in my body. i have been diagnosed officially with primary Addison's disease for 3 years. i had severe leg pain for 2 years prior. Getting a diagnosis of Addison's, thought horrible and "forever", was very validating for me. i had suffered so very horribly to that point with a very unsympathetic doctor who refused to treat my symptoms b/c he did not know a "diagnosis". Chronic pain makes you DEPRESSED and it is so hard to go on living. NOW--- after a major addisonian crisis that nearly cost me my life, i got an official diagnosis. i have a new internist, (and even prior to that crisis and diagnosis) he believed the best about me, SAW how much pain i was in, and came up with a treatment plan. i love him! he gave me my life back. i am a momma to many and i did not want to keep living with such pain. i take hydrocortisone AND florinef daily and life got so much better for me after that. but i still deal with (sometimes still) HORRIBLE leg pain. So, we have a treatment plan involving pain medication as baseline, and then breakthrough. i also got a handicapped hangtag for my car, for the days where it is just too bad to walk. i do not like to think of myself as disabled, though clearly i am. but if this is "chronic" and forever, it HAS to be manageable, and i HAVE to have pain control to not succumb to severe depression......it just hurts so damn bad. i truly praise God for such an internist. My endo is kind and a great medical doc, but it is my internist that truly gave me my life back. there is not a day that goes by that i am not extraordinarily grateful for his commitment to continually work with me to make my life bearable and be able to have JOY again with my family and children.
webber
You have received very good advice from many people and I would agree that you may still be low on electrolytes but I also think that you are suffering from muscle atrophy due to lack of use. When I was in pain and did not walk or exercise for periods of time I would get increased leg pain. I'm not sure if this is the case with you but if so start with small walks each day even if in pain and slowly but surely the pain should decrease. Good luck on your health search!
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