Ev,

My family is praying for you. Haplos ate becoming more common. My med team in SLC, UT ate really happy with the increased graft vs leukaemia they are seeing. Although I have not experienced SCT it sure seems that everyone's experience is unique. Praying SCT is the cure for you and that you have many years beyond 41. May almighty God grant you peace and comfort.

Blessings
Julie

Hope you are doing well Ev! I start Monday with Bulsafan followed by cytoxine. Transplant date is the 19th. I'll try to check in often and keep you all updated!

Fantastic Ev,

This is the annoying home stretch. Then the transplant and the waiting game and then you will be SPRUNG from the SLAMMER. Full speed ahead!!

Cliff

Ev and Tammy,

I'm praying Daily for both of you. May almighty God grant you peace.

Blessings
Julie

Tammy and Eve

You are both in my prayers. Stay positive, stay strong, walk and eat as much as you can.

Hugs

Karen

Tanmy,

Praying and thinking of you as you start your SCT journey tomorrow. Also praying for the eradication of AML from your body!

Xoxo
Julie

Tammy,

Ditto Julie's sentiments. There is light at the end of the tunnel and you will ACE your last test! It is truly onward and upward from here as you regain your strength and your good health! What a glorious day!

Cliff

Day -5today and done with Bulsufan. Rest day tomorrow then two days Cytoxine. Spiked a fever and blood cultures grew some bacteria so now I'm on heavy duty antibiotics. Drs aren't alarmed and nothing is delayed. Some minor mouth sores but it's from a consolidation round two weeks ago. No side effects from current chemo yet. So far the worst part is the blood draw for cultures at 3am. One from Hickman, one from vein but my veins don't cooperate.

Ev, how are you?

Tammy

Day 19 checking in ...

I wish I could say everything has been easier than I expected but this has been rough. But I am here, and I am moving forward. Thanks to everyone for your advice and words of inspiration!

Tammy, I hope you are doing well!

- Ev

Tanmy,

Tuesday is the big day right!? Praying the two days of Cytoxine are uneventful.

Julie

Thanks so much for checking in Ev! I'm sorry to hear you have had a rough journey but so glad you've made it through. I'm praying fire you everyday.

Blessings
Julie

Cytoxine is brutal. Everything from my tonsils (or where they'd be if not removed) to ears and sinuses burned, and sinuses were so stuffy. I sneezed a lot and then finally slept for 5 hours. Same thing tomorrow. Also have urinary Cather which isn't painful but not comfortable. Thankfully that comes out Monday.

Ev, sorry to hear you've had rough patch. GVHD? You do t have to,share. Many prayers!

Julie, yes, Tuesday!

Eve glad you checked ib, sorry you are having a rough time.

Tammy hang in there and I hope tomorrow is better than today.

You are both in my thoughts and prayers.

Hugs
Karen

Ev and Tammy,

This is the hard part and it will end and you will begin to feel better. Just keep looking straight ahead.

Cliff

Tammy and Ev,

My heart goes out to both of you. That memory is still very fresh in my mind. I was Bu/Cy as well and the Cytoxin was not a fun process.

You guys are both near or coming out of the nadir, which is the low point for sure.

Don't feel bad about feeling bad. Keep in mind this is a calculated near fatal poisoning of your body with specific purpose. It is a rough road to healing, but it is worth it!

Prayers are coming non stop from us out here for both of you.

John