Acute Myelogenous Leukemia (AML) Support Group
Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.
Sometimes just when you think you are on the fast track, things change.
I have posted often about my VERY slow count recovery. I am on a treatment plan of chemo only-four consolidation sessions. After round one, it took my platelets 72 days to get close to 100 (96). My team decided to slightly lower my high dose AriC (funny) from 3 to 2. They explained that there is nothing that shows the outcome will be less favorable with this dosage.
Now, at day 65, I have been waiting to go in for consolidation #3. Last week my counts were awesome. I had jumped up 54 points in two and half weeks to 92. my WBC was 5.2, HCT 30 and ANC at 3.9. The docs "toyed" with admitting me that day but decided to give it another week to see if my counts would climb a little more..........
Yesterday, I show up all packed and ready for my six day stay in chemo land feeling very well. That is until my labs came back. Platelets had dropped 4 points to 88 and ANC from 3.9 to 3.7. My body has done this before-made a big jump and then dropped a bit. I sat there wishing they had admitted me the previous week
After the disappointment of hearing my platelets had dropped, I get the "oh and your getting a BMB" WHAT????? Everyone on this board knows the effect that has on us. This will be my 6th since March. The procedure is not bad as I have my favorite PA (who looks 18) Dan Dan the bone marrow man, do all of mine. It is the now, the waiting.
After the procedure, one of my docs came in to assure me they do not believe they will find anything but that want to be extra, extra sure. That is a good thing and I know it is better to know all that we can. My last BMB was on June 6th and all was clear plus I've had a chemo treatment in the interim. She also discussed the potential of only doing 3 consolidation and/or lowering my dose again. Any change in the original plan worries me.
Thanks for letting me drown on. So sorry to be so needy, this just came out of the blue. I know God holds me in the palm of His hand and I trust Him to get me through this "speed bump" but encouragement from my daily strength family would truly help at this time.
Love and Blessing,
Julie
I have posted often about my VERY slow count recovery. I am on a treatment plan of chemo only-four consolidation sessions. After round one, it took my platelets 72 days to get close to 100 (96). My team decided to slightly lower my high dose AriC (funny) from 3 to 2. They explained that there is nothing that shows the outcome will be less favorable with this dosage.
Now, at day 65, I have been waiting to go in for consolidation #3. Last week my counts were awesome. I had jumped up 54 points in two and half weeks to 92. my WBC was 5.2, HCT 30 and ANC at 3.9. The docs "toyed" with admitting me that day but decided to give it another week to see if my counts would climb a little more..........
Yesterday, I show up all packed and ready for my six day stay in chemo land feeling very well. That is until my labs came back. Platelets had dropped 4 points to 88 and ANC from 3.9 to 3.7. My body has done this before-made a big jump and then dropped a bit. I sat there wishing they had admitted me the previous week
After the disappointment of hearing my platelets had dropped, I get the "oh and your getting a BMB" WHAT????? Everyone on this board knows the effect that has on us. This will be my 6th since March. The procedure is not bad as I have my favorite PA (who looks 18) Dan Dan the bone marrow man, do all of mine. It is the now, the waiting.
After the procedure, one of my docs came in to assure me they do not believe they will find anything but that want to be extra, extra sure. That is a good thing and I know it is better to know all that we can. My last BMB was on June 6th and all was clear plus I've had a chemo treatment in the interim. She also discussed the potential of only doing 3 consolidation and/or lowering my dose again. Any change in the original plan worries me.
Thanks for letting me drown on. So sorry to be so needy, this just came out of the blue. I know God holds me in the palm of His hand and I trust Him to get me through this "speed bump" but encouragement from my daily strength family would truly help at this time.
Love and Blessing,
Julie
Ed
Cliff
I have had two viruses in the last three month, both lasting more than 4 weeks and I am careful. My son was working at a day camp and my daughter is a nanny, so I worry about what comes in on their clothing or body.. I feel like my only safe zone is my house. Since I get treatments still, I feel like I live a life of neutropenia, but I would rather be ultra careful.
We also have crazy home rituals.Purell is everywhere, but I remind my family that it's not a replacement for washing hands, just an added security.
Also, be sure to get your flu shots everyone.
Stay well. Peace,
Andrea
Julie
Shoshone