Acute Myelogenous Leukemia (AML) Support Group
Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.
For years I casually referred to myself as a renegade Christian. But let me tell you when I was looking straight into death, there was no renegade about me. I completely surrendered. My brain stopped bleeding and rapidly started to heal itself. I am no longer a "Renegade Christian." I don't know what to make of it. But I do know that I am so grateful to be alive. To be in remission. I look at life so much different now.
Everyone should get the chance to live like they were dying. Some of the words:
I loved deeper and I spoke sweeter
and I gave forgiveness I'd been denying ...
He said "I hope some day you get that chance ...
to live like you were dying."
I doubt there are too many on this forum who do not recognize the value of the experience that they have gone thru, or perhaps are going through. If not, I think someday you will.
If you want to hear my rendition of "Live Like You Were Dying" it is at http://UncleDavesJukebox.com
I must admit -- I got a bit emotional. Use earphones or PC speakers -- it will not come out very well on laptop speakers. I am just getting started trying to make the BR-8 recorder work. -- dave
Several events that occurred around the time my father left us and after his passing made me absolutely convinced that the life of the soul continues after death. I believed this before, but now I don't believe, I KNOW without doubt. And this is a good thing, because it changed me in a lot of ways. I know that I will meet my father again, and I am not afraid to go when my time comes.
Cliff
I am like Cliff, kicking and screaming I will go, but because I need the solace of knowing my family will not suffer. That by far has been my biggest goal, getting home to take care of the family God entrusted to me. I also want to spread the word to others suffering. I miss Ollie and am so lucky to have hopped on this forum when I did. The love you have all given me is beyond words.
Today is my daughter's 22 birthday. I am housed in the same hospital I gave birth all those years ago. Tonight she wants to celebrate with an ACME (store bought cake). Normally, I would be up making chicken Parmesan, pot roast, lasagna and Caesar salad for about 30 people. She was the first grandchild on both sides of the family. So this year, we adjust. I told her, when we are done with this AML thing, we will celebrate everyone's birthday we missed this year at the beachfront houseI intend to rent for a week with my borrowed 401 k money. Then it will be right in the world again. Love you all! Happy Sunday!
Peace, love & hope eternal.
Andrea
I don't know what it is about you. Your posts always bring out emotion in me, usually a big smile. Your zest for life and your uncomplaining nature is a pleasure to behold. Your family must cherish you.
Cliff
I also will fight tooth and nail to live. For a few days though, I was powerless. And a gave it up to God and was blessed with peace.
I came in right at the time Ollie died. I wish so much I could have known him. I will read through past posts.
There is a readon for every experience we have ... God is in control. -- dave
--Gloria
Thanksgiving was just a few short days ago. This year's holiday was so much better than last year. My family ended up together for several hours at my parent's house as opposed to scattered between here and Duke where my sister was last Thanksgiving. And we all got homemade pumpkin pie. =)
But then I got to thinking about how different this year was from last year on a deeper level. This year was good, family was together, we shared laughter and tears, and more laughter. Last year we were scared it was the end of Nicole's life with us on this side of eternity, yet we kept hoping and praying for a miracle that would heal her. This year she is not with us; we didn't get the miracle we prayed for. My deep, soul searching questions on Thanksgiving day while in the middle of grief: What can we be thankful for this year? Is it possible to be thankful for her leukemia diagnosis? Thankful for Leukemia???? Can that be????
I pondered it for a while and found my answer. Yes. There is much to be thankful for, even if that phrase sounds rather cliche. And yes, I can be thankful for her leukemia diagnosis because there were good things tucked inside of it.
Here is my list of things I am thankful for as they came wrapped in a leukemia diagnosis:
My relationship with my sister is a treasure. Now more than ever.
My family united in ways I'd not seen in a very, very long time. And we are still very close even a year later.
I am thankful for new friendships I would not have had otherwise. Nicole's illness brought us together.
I am thankful for new experiences that have enriched my life, both before and after Nicole died, but all of them directly related to her diagnosis and treatments.
I am thankful that our entire family was with Nicole as she breathed her last. It was peaceful and beautiful. I am glad we were there to say "good bye" and sing her into eternity. It was powerful.
I am thankful for bad days. Good days too, but also the bad. They let me know the grief hasn't overwhelmed me to the point of becoming numb. Numb days would mean something is horribly wrong. Bad days are still good because I am feeling something.
I am thankful for Nicole's example of strength and courage, both clothed in grace, as she faced each treatment. I learned so much from her in how she approached every day. I try to emulate her in that way.
I am thankful for the bond I have with Nicole's little boy, my nephew. Those many hours in the car to go "see mama!" let us talk (or I talked and he babbled) and sing and laugh together. So many fun memories! The nights we kept him and I tucked him in bed we prayed together for Nicole. Besides his Nana, his face lights up when I enter the room and that makes this auntie very, very happy. =)
I am thankful for the spiritual lessons I learned through this Leukemia journey. I found the solid bed-rock of my faith and even death cannot move me. My relationship with God is deeper and more authentic than it was before. "yea, though I walk through the valley of the shadow of death I will fear no evil, for Thou art with me" is not just a verse of the 23rd Psalm quoted by rote memory - it has been my experience. A deeply profound experience that has changed much in my heart. Too many experiences and revelations to share here..........
I am thankful for the closer relationship between my brother and I as we walked through this with our sister, and then with each other in grief. Tough as he is, he is quicker now to show emotion and tell me that he loves me. Those words are treasures.
I am thankful for the authenticity that other family members have had to embrace. With the masks down is makes relationships more true. I value that. Life is too short to be unauthentic with those closest to you.
And I could go on.......
Leukemia is not something I would ever ask for. It was a hard, painful journey that did not end with happy news as it does for so many others. Yet in the wake left behind I can see good things. I can still find things to be thankful for. =)
thank you for sharing your journal with us. Your precious, sister Nicole was so special, thank the Lord for her.
By the grace of God, she has left you and your family with so many beautiful gifts to cherish. Nicole's life will never be in vain. I can't explain the mixed emotions of sadness and yet so much joy, your posting brought out in me. Please make sure many, many people see it. It surely is a testimony to God's grace. Nehemiah 8:10 "the joy of the Lord is your strength"
Thank you again Gloria
You are in my prayers,
Sandra.