Acute Myelogenous Leukemia (AML) Support Group
Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.
I thought I would give an update on Jeremy. Yesterday was 18 months post SCT for him and he is doing well. He is off all meds except an antiviral as his whites are still lower than normal by .02.
He and his wife are planning their first vacation and looking forward to getting away for a few days.
He has 16 months left on his ped psych fellowship and really looking forward to helping children in need.
I want to thank everyone for their continued prayers and if anyone wants to talk to a psych that has been through a SCT I am sure he would be happy to talk with you.
Hugs and prayers
Karen
He and his wife are planning their first vacation and looking forward to getting away for a few days.
He has 16 months left on his ped psych fellowship and really looking forward to helping children in need.
I want to thank everyone for their continued prayers and if anyone wants to talk to a psych that has been through a SCT I am sure he would be happy to talk with you.
Hugs and prayers
Karen
Hugs
Karen
Blessings
Julie
I am thrilled to hear about Jeremy's good health. I am 4.5 years post transplant and my CD4 count is still low. I just had it drawn on Friday and we'll see. I hope he enjoys his fellowship and that it isn't too much work. My daughter is finishing her internship and will be starting her residency in anesthesiology this summer. She has worked so hard this year and I hope she has more time as a resident to enjoy herself. Nevertheless, I think you will agree that good health is number one and that everything else in life follows that.
Be well,
Cliff
Cliff I was hoping you would post as I thought you had low CD4 also.
They are being good to him at Renown and not over working him. They have been wonderful giving him time off for all of his appointments, treatment and transplant. I am so happy that he chose to dp his residency and fellowship there.
Best wishes as your daughter approaches this next chapter in her life and you are right good health trumps everything.
Hugs
Karen
It's a bit ironic that training programs can be crushing, and yet when there are issues with the fellows or residents, they can be very accommodating. Just to put things in perspective, my daughter told me that one of the Chief Residents in internal medicine was just diagnosed with a pontine brain tumor. I cried for him. While Jeremy's prognosis for a long and happy life is already so good, this guy's outlook is terrible. No one ever wishes to be stricken with a malignancy, but at least there is great hope of cure for AML. I have high hopes for those of us on DS who are currently experiencing "speed bumps" or even "hills" on the road to recovery. The future is bright if you keep your eyes on the horizon and not on your feet.
I am so happy for Jeremy, and so happy for YOU.
Cliff
Hugs
Karen
You are too nice.
Cliff
Karen
So great to read Jeremy's new normal is more normal normal! Praying for his continued remission
Blessings
Julie
Karen
So great to hear that Jeremy is now focusing on wearing his contact lenses again and not AML. Fantastic!
Cliff
He tells me he feels fine and I must say he looks good. They have gone on a few short vacations to the Bay area and he has started his last year of his ped psych fellowship.
Karen
My husband had AML.
Thank you a million times over, this is wonderful news!
To hear this news on Jeremy, fills my heart with, hope, for all, who are battling this
horrendous disease.
I know he has gone through so much pain, suffering, turmoil and anguish to get to this point., you have surely, felt it too.
Thanks for this Amazing, wonderful news. I will keep him in my prayers.
The people on this site are so precious to me, to keep them in my prayers, is all, I can do.
If this site fades away; there will be so many people, who are desperate to reach out for help, who will have nowhere to turn. You and others who know this disease can be conquered can give those people hope.
This forum was, a beacon of light, for my husband and I as we searched desperately for more and more information to deal with the uncertainty of this disease.
There is hope, your Jeremy, has survived it. I really do keep you all in my prayers.
May Our God of all Hope, bless and keep us.
I could not easy or any better than precious Sandra, outstanding update on Jeremy!
Also, i agree that it is such a shame to see participation wane here. I truly feel connected to so many of you and miss the updates.
I pray daily for all fighting this disease whether in the midst of thee battle or continued remission
Blessings
Julie
Thank you for your continued prayers and support.
Karen