Acute Myelogenous Leukemia (AML) Support Group
Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.
Bone marrow biopsy shows no leukemia and no MDS! Very good news. Now I get my labs once a month and the docs every 3 months.
My cell counts are almost normal now. Still below but I can live with it where it is at. The onc said I have a 70% chance of staying in remission. And if I get through this next year without relpase, he will expect an 80 to 90% cure.
I hope this news is inspiration for others on this site that it is possible to put this beast down.
You are all in my prayers that good news comes your way also.
Love,
lily
My cell counts are almost normal now. Still below but I can live with it where it is at. The onc said I have a 70% chance of staying in remission. And if I get through this next year without relpase, he will expect an 80 to 90% cure.
I hope this news is inspiration for others on this site that it is possible to put this beast down.
You are all in my prayers that good news comes your way also.
Love,
lily
You are getting there! Almost done and you will get through all the dr visits before you know it. I looked at my calander yesterday and couldn't believe NO APPOINTMENTS for two weeks. What will I do with all that time. Maybe something fun. :-)
Thank you Suzanne, Nicole and Robin. It is such a sweet relief. I didn't realize how much stress I put myself under. Just the fear. The onc was talking yesterday about a transplant again if I relapse. I just let it fly right by. Yes there is a 30% chance, as he said. I am going to focus on the 70% of no relapse.
lily
God is good! What sweet news! Congratulations to the both of you!
Myra
I am thrilled for you both! A happy dance indeed is in order.
Peace,
Andrea
Horah indeed, Cliff :)
I am imagining you dancing through the isles at Old Navy. I always tell my kids that I will pay them $100 if they dance through a store. Strangely, none of them have ever taken my offer.
It's great to hear some good news. It's just like everything else with this disease....there are ups and there are downs. As long as the ups trump the downs, that's great!
Cliff
Lily-My husbands numbers have remained on the low side since he finished his chemo, but the docs have told us that's OK-low normal is fine. Even platelets - she said all you need is a 100 for neurosurgery-so if that is as high as it ever gets you'll be just fine.
Abby: The 2-year mark! That has to feel amazing. Our Oncologist said 2 years was a real milestone. And 3 years was the magic number for AML.
When you count the months (and years) in remission is it from the first time the docs said you are clinically in remission (like for us after induction) or does it start at the end of treatment? My husband's blast went from 85% to 2 % after his induction but the 2 % left still had the same characteristics as his original leukemia cells (NPM1 and the CD markers). After his fourth consolidation they did another biopsy, he still had 2 % blast but this time none of the cells had any leukemia characteristics. So we know he still had leukemia after the induction but they still said we were in remission (because his blast were under 5 %). It is just really confusing. It will be one year in Sept since they told us he as in remission and he finished his last consolidation in Jan.
:) Julie
Abby.. I agree with Julie, that two year is a milestone. It has to just feel amazing! Such a joy to share in that with you. You did it girl!
dppmeeks, It is a blessing to us all. When one of us has good news, we all can see the possibilites. Abby hitting the two year mark. So huge! Sometimes when we are so bogged down in treatment and feeling so awful it seems endless. When we witness someone like Abby making it. We all can say "YES"
Blessings
lily
My prayers go out to all of you!
June
I am praying for your Moms remission.
lily
The 2-year mark with be in October. So not there yet....but getting closer every day.
Remission is a beautiful word, totally agree!
Abby
Just completed my pilgrimage in Spain, feeling wonderful, healthy and happy!
Long may it last for all of us!
Yours in dancing
Renate
Thanks for reminding me about your October-fest. What is the exact day of your second birthday? Mine is September 8. I think we need to channel our good fortune into energy that we can send out to our brothers and sisters who are behind us in time post-treatment, but not behind in hope for themselves and concern for others. I am praying for June's mom, and dancing with you and Shimauta. Anyone for a waltz? I was going to say a two-step, but since we all have had experience with that during our treatments (the Aztec two-step, that is), I resisted.
Love to all,
Cliff.
PS: To you Eddie....I plan to go to Old Navy tomorrow...not to buy anything, but just to dance down the aisles as a war-dance for your amazing response to the new drug and for the transplant you will be getting in the not so distant future. I am taking my cue from you, and there should be enough people there to call security. If you read this, let me know what dance you want me to do. Unlike my daughters, who refuse to dance in stores even when bribed by me, I have no shame and am willing to do most anything. Really. Hold on the Twist, however, because my back is not what it used to be.
The good news about me is my BMB results just came out a few days ago,STILL IN REMISSION. Like Abby, I am waiting for the two-year milestone in the coming Oct.while enjoying each day, and feeling very much blessed.
Can't wait to hear more good news from you.
Love
Donna