Acute Myelogenous Leukemia (AML) Support Group

Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.

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Leukemias
/ Acute Myelogenous Leukemia (AML) Support Group

My Journey

Chica73
Chica73

I was dx'd with AML after passing out in a local pharmacy April 10, 2018.  I  spent nearly 2 months in the hospital. I finished my first round of chemo and was dx'd with pneumonia, fungal pnemonia, and C-Diff. Finished Hi-dac and now and preparing for my BMT. I am so excited, nervous, and scared. I am so exhausted, and can't get enough rest. Today has been a rough day, I am trying to give my family a semi normal summer but it has been trying. I hope joining this group will help me on my rough day, and that on my good days I can help encourage someone else

Noodle65
Noodle65
Dearest Chica

So sorry to hear of your Dx but pleased you are reaching for help and to help others.

This support group was once very active; however, participation had dropped off.

There is another group at the lymphoma leukemia society site at the following link:

https://communityview.lls.org/groups/acute-myeloid-leukemia

I would love to help you get through your bumps. I was dxd over 5 years ago at age 48 with three daughters age 8, 10 and 12. I am doing very well with returned health.

Please join us at the other site. If you'd like to chat directly, you can private message me also.

Blessings
Julie
wiscoll
wiscoll
Hi Julie,
I joined today and posted before I read ahead. I see that this group is largely inactive so will be joining the LLS group you recommended. Thanks for passing the word.
Cape Cod Mary
Ouilliam
Ouilliam
Ditto the above. I have a friend who was recently diagnosed, and am hoping to learn more of what he can expect as he's doing his first chemo and i think a transplant (Marrow? STem cell? Other?) to follow. Not wanting to put him through what may be an unending litany of having to educate not only friends but all those of us who care about him but aren't at the center of his circle of friends. I will connect with your suggested site--- https://communityview.lls.org/groups/acute-myeloid-leukemia.

Blessings to you and your, and thank you.