JayleneB

Activity

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  Journal Like

  Posted by: JayleneB

  Posted: 01/26/2017

  JayleneB liked TeamDS's journal Affirmation for January 26, 2017.

• MCTD
  

  feeling like a failure

  Posted by: JayleneB

  Last Reply: MToennis 01/27/2017

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  The fatigue and muscle weakness is something I have been dealing with for years. I wish some days that massage therapy was covered under my insurance it feels like all the blood has left the muscles and they just ache. It's SO DIFFICULT to try to explain to someone why you are so sore n tired when you look what people would consider"normal" on the outside I try to explain it is a war zone inside my body a constant fight with no end in sight. I try to take naps but then feel guilty because I...

• MCTD
  

  Discussion Comment

  Posted by: JayleneB

  Posted: 10/29/2016

  JayleneB commented on the discussion To much research.

• MCTD
  

  Discussion Comment

  Posted by: JayleneB

  Posted: 10/17/2016

  JayleneB commented on the discussion To much research.

• MCTD
  

  To much research

  Posted by: JayleneB

  Last Reply: MToennis 11/22/2016

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  Of course when I was diagnosed a year ago I googled and read everything I could find on MCTD and it seems everywhere I turn there's something telling me if Im lucky 80% of us diagnosed will live ten years after the diagnosis. Scary thought and it seems no one knows about this disease so its a 20 min discussion on what it is. It seems no one understands the pain the frustration the pure exhaustion of daily suffering and being tired ALL the time. I am a single mom struggling to do motherly duties...

• MCTD
  

  Discussion Comment

  Posted by: JayleneB

  Posted: 10/09/2016

  JayleneB commented on the discussion Methotrexate.

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  Joined New Group

  Posted by: JayleneB

  Posted: 10/09/2016

  JayleneB joined the group MCTD.

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  Joined New Group

  Posted by: JayleneB

  Posted: 10/09/2016

  JayleneB joined the group mctd.

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  New Friend

  Posted by: JayleneB

  Posted: 10/09/2016

  JayleneB became friends with TeamDS.