romeomustdie
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- Hi everyone!I have been back and forth, up and down, round and round with a few doctors as I navigate my health issues.One doctor diagnosed me with lupus (positive Smith antibody, but negative ANA), dermatomyositis (positive Mi2 antibody), and...
- I will try to make this as short as possible, but I think we all know, most of our 'journeys' have been long and winding. About 15 years ago, I developed a rash on my chest and back. Finally, it was biopsied and it came back as subacute cutaneous...
- Hi everyone. I was recently seen by a very well known medical center to evaluate my treatment plan for lupus and dermatomyositis, and now I'm completely confused. Briefly, I had a negative/low titer ANA for many years and was told 'nothing' was...
- Hi everyone.I was recently seen by a very well known medical center to evaluate my treatment plan for lupus and dermatomyositis, and now I'm completely confused.Briefly, I had a negative/low titer ANA for many years and was told 'nothing' was wrong....
- Hi there all!I have a long story but the bottom line is I was diagnosed with lupus (positive anti-Smith antibody) and dermatomyositis (positive Mi-2 antibody) last year, after many, many years of suffering and searching. I finally had an answer! ...
- I know this seems like a weird question, but everything I read about dermatomyositis says that the symptoms (weakness, redness, etc.) is symmetrical. I don't have that really at all.My right eyelid is swollen, but my left isn't. My right hand has...
- Hi everyone ...I was diagnosed with dermatomyositis AND lupus about a year ago. One month ago, I was also diagnosed with pernicious anemia. I am at my wits end. My local rheumy is very nice but I've been on prednisone for ONE YEAR and it has done...
- Hi everyone. I was diagnosed with lupus (positive anti-Smith antibody) and dermatomyositis (positive Mi-2 antibody) this past spring. I felt it explained so very much of what had been going on with my body during the last several years. I was put...
- Hi everyone. I was diagnosed with lupus (positive anti-Smith antibody) and dermatomyositis (positive Mi-2 antibody) this past spring. I felt it explained so very much of what had been going on with my body during the last several years. I was put...
- Hi everyone.I was diagnosed with lupus (positive anti-Smith antibody) and dermatomyositis (positive Mi-2 antibody) this past spring. I felt it explained so very much of what had been going on with my body during the last several years.I was put on...
- I was just diagnosed with lupus (and dermatomyositis) after many years of struggling, feeling crazy, people assuming I was a hypochondriac, all of it. I was relieved to have some names to the monsters I've been dealing with ... but was also feeling...
- I was just diagnosed with dermatomyositis (and lupus) after many years of struggling, feeling crazy, people assuming I was a hypochondriac, all of it. I was relieved to have some names to the monsters I've been dealing with ... but was also feeling...
- Hi there everyone!I just had a TON of bloodwork done as a workup for some problems I've been having over the years. I went in to get the results last week and found out I have lupus and dermatomyositis. Well, I asked for copies of my bloodwork and...
- Hi Everyone ... I'm new and I'm scared. I'll try to make my story short ... but like many of you, it's so dang long until I think (and hope) I'm now finally getting some answers. About 15 years ago, I developed a rash on my back and chest. Red,...
- Hi Everyone ... I'm new and I'm scared. Terrified actually.I'll try to make my story short ... but like many of you, it's so dang long until I think (and hope) I'm now finally getting some answers. About 15 years ago, I developed a rash on my back...