Breezylynnebrownie

Activity

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Breezylynnebrownie

  Posted: 12/25/2019

  Breezylynnebrownie commented on the discussion Myasthenia gravis and pregnancy.

• Myasthenia Gravis
  

  Myasthenia gravis and pregnancy

  Posted by: Breezylynnebrownie

  Last Reply: cgreens 01/24/2020

  4

  0

  Hey guys, I'm just looking for a little input or experience as far as women who have become pregnant with MG. I was diagnosed in 2009 when I was 13. I had a thymectomy with no remission. Mestinon and IVIG have been my treatments methods for the last 6 months. Prior to that was plasmapheresis. Anyway, I'm 24 now and my husband I just learned we are 11 weeks pregnant and although the baby is strong and healthy I'm worried about the later months and labor. If anyone has any experience they can...

• Myasthenia Gravis
  

  Solaris?

  Posted by: Breezylynnebrownie

  Last Reply: onceinparadise 08/04/2019

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  0

  Im 23, was diagnosed at 13 and I've had a thymectomy, been on mestinon 180mg twice daily and 60mg 4 times daily, imuran 50mg twice daily, and IVIG every 4 weeks for years now but still dont seem to be functioning and feeling like I know I should. Has anyone here tried Solaris infusions? If so how have the results been?

• Myasthenia Gravis For Young People
  

  Solaris

  Posted by: Breezylynnebrownie

  Posted: 01/07/2019

  0

  0

  I've been on mestinon 180mg twice daily and 60mg 4 times daily, imuran 50mg twice daily, and IVIG every 4 weeks for years now but still dont seem to be functioning and feeling like I know I should. Has anyone here tried Solaris infusions? If so how have the results been?