rwclark

6/22/16Feeling good no problems except starting to puff up and gaining weight. The predasone 40my is having it's effect. Better than the alternative. On our FL beach trip, fun in the sun. 

June 17, 2016I continue to seem to be in remission. Only dealing with fatigue. I feel great. Hope it continues. Wish this for everybody. Forty mg of preodisone, 660mg of mestinon and 100mg of...

6/3/16Things have not improved much. I have increased my preonisone  to 40mg yesterday and also taking 180 mestinon four times a day an hour before meals and at bed time. Still having trouble...

5/18/16Today was a good day. I have been able to talk, chew, and swallow with out too much trouble. There is a light at the end of the tunnel. I did up my prednisone to 30 mg but this started...

I want to mention that I have had two IVIG of 5 treatment each time and two Plasma exchanges of 5 each time. I had a skin rash to the IVIG and the Plasma exchange didn't seem to do any good.