Mimi8

Activity

• Acromegaly
  

  Discussion Comment

  Posted by: Mimi8

  Posted: 06/21/2018

  Mimi8 commented on the discussion Somatuline.

• Acromegaly
  

  Discussion Comment

  Posted by: Mimi8

  Posted: 06/19/2018

  Mimi8 commented on the discussion 50 years of acromegaly.

• Acromegaly
  

  Discussion Comment

  Posted by: Mimi8

  Posted: 05/18/2018

  Mimi8 commented on the discussion Recommendation for surgeon..

• Acromegaly
  

  Somatuline Depot and Heart Issues

  Posted by: Mimi8

  Posted: 05/03/2017

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  Has anyone experienced heart problems while on somatuline depot?  I have been on 90mg since October 2014.  Just recently I was diagnosed with sinus bradycardia (low pulse rate), mitral valve insufficiency and tricuspid valve insufficiency (my last cardio checkup was in May 2016 and the doc told me my heart which had been slightly enlarged before surgery in Feb. 2014 was back to normal size and everything else looked good).  Now Cardiologist said I may need a pacemaker - I am on 30 day heart...

• Acromegaly
  

  Discussion Comment

  Posted by: Mimi8

  Posted: 04/24/2017

  Mimi8 commented on the discussion Somatuline and surgery advice.

• Acromegaly
  

  Discussion Comment

  Posted by: Mimi8

  Posted: 04/24/2017

  Mimi8 commented on the discussion Somatuline and surgery advice.

• Acromegaly
  

  Alkaline Phosphatase Level High

  Posted by: Mimi8

  Posted: 03/28/2017

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  Hi All -Had surgery February 2014 to remove 1.4 cm tumor.  Doc said MRI right after surgery looked like he got it all.  Growth hormone went back to normal and IGF-1 went down from 900s to 300s.  Then by August IGF-1 started to climb again. MRI showed residual tumor.  Doc wanted to start me on meds but I wanted to see if it would go back down.   Reached high 500s by October, so I started on Somatuline Depot 90mg.  Got IGF-1 under control.MRI in June 2015 no change. MRI in June 2016 showed...

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  Joined New Group

  Posted by: Mimi8

  Posted: 03/28/2017

  Mimi8 joined the group Acromegaly.

• Acromegaly
  

  Discussion Comment

  Posted by: Mimi8

  Posted: 03/28/2017

  Mimi8 commented on the discussion Hunger.