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KatesGram

Status: Still some headache but overall getting better.

Mood: Ok

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Post-op MRI/update

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I had my 6 week post-op MRI yesterday and no residual tumor was seen> I am very relieved. The next hurdle will be a GH suppression test in about 5-6 weeks. I am hoping that my GH levels stay low. My post-op IGF-1 was higher than all the others at...
3 weeks and 1 day

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Surgery was 22 days ago and this afternoon I started to feel really good and normal again! It was Waaaay more stressful and painful post-op than I had prepared for but, all in all, feeling good. I had a masterful ENT and had nose breathing from the...
3 Days Post-op

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Just a quick update after endonasal removal of my microadenoma. I awoke with very little pain and noted that my symptoms of brain fogginess and joint and muscle pain were almost gone. Overall< I am now having some sinus pressure type headaches...
12 hours to surgery

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I went for my preop at the hospital today and got home feeling pumped. I have noticed that my fears have turned to a bit of joy and excitement at the prospect of feeling better. I do know that I've got a road of recovery to walk on but I am thankful...
It IS a New Year!!

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My life changed dramatically in Sept 2013 when an MRI showed a tiny tumor that was causing galactorrhea. My PCP said I needed surgery but i saw an endo who said cabergoline is best.I spent all of 2014 on 0.75 mg twice weekly -- feeling some days...
Cabergoline withdrawal?

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I was asked by endo to stop cabergoline to check my IGF-1 level off of medication and 17 days in I feel terrible!!! Drowsy, depressed, at times having suicidal thoughts --(I would never act on them) --but has anyone ever stopped the med and how long...
Headaches

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I had a few migraines prior to finding out about my prolactinoma. When I had my first MRI, I was found to have some white matter disease that a Neurologist is following. I had my 6 month follow-up and mentioned my frequent headaches and she...
Lactation

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I was diagnosed with a 7 mm prolactinoma about 2.5 months ago. I was started on Cabergoline 0.5 mg twice weekly and have felt mostly terrible. My prolactin has gone from 163 to about 30.I still have breast milk and I was wondering how long it took...

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