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frustration with poor medical treatment

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Hi, this is going to be more of a vent than anything else. I am on Medicaid; so I'm stuck with the doctors that I am assigned to. My doctor seems to have good intentions but does not believe in Ehlers Danlos. I have had trouble with my joints and...
new here---EDS type 3 and adrenal exhaustion

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Hi,My sister and I had genetic testing a while back and we both have multiple bad genes for EDS---mostly type 3/ connective tissue and joints. There seems to quite a variety of types of EDS---and a range of severity that is different with each...
lower cost testing for HH

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I recently found a place for genetic testing that is within my poor little budget. They do test for the 3 most common HH genes, as well as dozens of other genes and physical traits. It's 23andme.com. I am waiting for my test results---looking...
Got allergies?

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How many HH-ers here also have allergies?Both my paretnts and both siblings (and myself) have an array of odd allergies. One goes anaphylactic if she take NSAIDS; one can't eat strawberries; I go anaphylactic or nearly so with flax and aloe, a...
sort of a poll

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I'm wondering if anyone here has experienced these symptoms because of HH:1) bone loss or osteoporosis; a grinding sensation in your jonts when you move around.2) your body can't seem to tolerate any kind of vitamin or nutritional supplement---or...
Newbie

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I just wanted to say hi to y'all. Has anyone here caught their HH at an early stage before the ferritin got really high? or before their saturation % was still under 45%?I'm at the early stage of all of this. Have not had the genetic testing yet.

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frustration with poor medical treatment

new here---EDS type 3 and adrenal exhaustion

lower cost testing for HH

Got allergies?

sort of a poll

Newbie