birkita

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Leg pains

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Is anybody having leg pains that are most probably connected to HH. I have lots of brown spots and indentations on my legs that were at first thought to be from faulty veins. I had a full bilateral ultrasound which showed my veins to be great and...
Have polycythemia with no genetic proof

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My Hematologist has diagnosed me with polycythemia but the genetic test and bone marrow biopsy has shown nothing unusual. My Hematocrit is constantly in the high range and I have leg and mouth ulcers as well as plenty of brown marks appearing on my...
Ever heard POP when being given the needle?

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I went to the ONC for more tests today and had a different nurse to the one who gives me my phlebs. Oh boy, she struggled like crazy putting the needle in claiming my veins were damaged then there was a sudden and loud POP from my arm and the blood...
Bone marrow biopsy

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My hemoglobin and hemocrit have been pushing or over the limits for over a year so after my last HH phleb my doctor told me I am to have a bone marrow biopsy. Is there anyone who can give me some tips or tell me honestly it will not hurt like all...
Laser Therapy

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Has any one used cold laser therapy for pain relief associated with HH?

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Leg pains

Have polycythemia with no genetic proof

Ever heard POP when being given the needle?

Bone marrow biopsy

Laser Therapy