My Hematologist has diagnosed me with polycythemia but the genetic test and bone marrow biopsy has shown nothing unusual. My Hematocrit is constantly in the high range and I have leg and mouth ulcers as well as plenty of brown marks appearing on my legs. My blood is often so thick it takes multiple heparin shots to do phlebs. Now my insurance is messing around with needing preapprovals for phlebs and being as difficult as possible. My question is, do all the polycythemia vera sufferers here have tests proving their diagnosis? I also have Hemochromatosis so cannot donate blood to the Red Cross etc.
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