bethchico

Activity

• Hemochromatosis
  

  Newly diagonsed.. sort of?

  Posted by: bethchico

  Last Reply: Irony 07/10/2020

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  My 19 year old son was just identified as having the genetic mutation for H63d.. so a carrier of HH?  But his ferritin is like 4000 so they suspect juvenile hemochomotosis. They say the gentic mutation of H63d can't be causing this much havoc on his body.   He has seen 4 docs and they have ordered tons of tests, but all admit they are a little out of their league and don't have experience with the juvenile version which is more serious.  His first phlebotomoy did not go well (faint, vomit,...

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  Joined New Group

  Posted by: bethchico

  Posted: 05/21/2020

  bethchico joined the group Hemochromatosis.

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  New Friend

  Posted by: bethchico

  Posted: 05/21/2020

  bethchico became friends with TeamDS.