dongusbologna

Activity

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: dongusbologna

  Posted: 12/02/2021

  dongusbologna commented on the discussion Spike in symptoms- how do you ramp up prednisone?.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: dongusbologna

  Posted: 12/02/2021

  dongusbologna commented on the discussion Spike in symptoms- how do you ramp up prednisone?.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: dongusbologna

  Posted: 12/02/2021

  dongusbologna commented on the discussion Spike in symptoms- how do you ramp up prednisone?.

• Myasthenia Gravis
  

  Spike in symptoms- how do you ramp up prednisone?

  Posted by: dongusbologna

  Last Reply: annkemp 12/08/2021

  14

  0

  Seems like an obvious question (and I'm seeing my neurologist on monday) but I'm curious: when symptoms suddenly come back, how fast do you ramp up and how much? I've been lucky to not have really any symptoms since I got to the right dose of prednisone about 2 years ago. I strted with 80mg, then switched to every other day, then got it down to 30mg every other day. What's weird is that I was at 30 for about a month and only noticed the slightest tinge of symptoms when I hadn't had mestinon in...

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: dongusbologna

  Posted: 12/01/2021

  dongusbologna commented on the discussion Fluconazole?.

• Myasthenia Gravis
  

  Fluconazole?

  Posted by: dongusbologna

  Last Reply: JerryS 12/09/2021

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  0

  Hey all, I've thankfully not been on this board in a few years. Once I got on prednisone, things improved and I started taking less and less over the last 2 years. Last week, I was on 30mg every other day and starting to think "wow, maybe it's gone?" because I so rarely felt even the tinge of symptoms. That has unfortunately changed. Over the last week, I've noticed my eyes getting really tired again, my mouth stiffening up, and my throat closing a little- that weird swollen feeling that...

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: dongusbologna

  Posted: 05/13/2019

  dongusbologna commented on the discussion New to this. 3 questions about timing.

• Myasthenia Gravis
  

  New to this. 3 questions about timing

  Posted by: dongusbologna

  Last Reply: philomena50 05/15/2019

  6

  1

  Hey all, my names Mike and I'm unfortunately part of this group now (no offense haha). Quick backstory:September 2018: First symptoms- tongue weakness after eating, double vision/blurry vision (like somethings in my eye) towards the end of the dayOctober 2018: Speech issues start up, chewing and swallowing becomes harderDecember 2018: Officially diagnosed, pyridostigmine 60m 3-4 times a day starts upNow I just have varying levels of the above, with the excepton of some slight arm or hand...

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  Joined New Group

  Posted by: dongusbologna

  Posted: 05/05/2019

  dongusbologna joined the group Myasthenia Gravis.