Ripvanrep

Activity

• Porphyria
  

  What is the deal here?

  Posted by: Ripvanrep

  Last Reply: orion77 08/21/2018

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  By no means am I being disrespectful or downing or anything of this factor, but I don't understand this?My wife and I see many older posts on here and new where people with this disease are asking to either chat with someone who has the same disease or just get in contact with anyone to not feel like there alone, but no one wants to reply to any of these posts? But my wife replied to a recent post with no reply? I mean what is the sense of this site if no one wants to chat?I don't get it? My...

• Porphyria
  

  Discussion Comment

  Posted by: Ripvanrep

  Posted: 07/21/2018

  Ripvanrep commented on the discussion carrier.

• Porphyria
  

  My name is Kat, , and I have both AIP and VAR....

  Posted by: Ripvanrep

  Last Reply: squidbilly821 08/20/2018

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  Please, I need a chat buddy to talk to..........I'm IN Massachusetts, but I feel like I'm on the moon........only serious and DX with porphyria......You have no idea what it feels like to talk to someone who for 5 yrs is just a wanna be from Salem, MA........I was totally heartbroken to talk about this to a person who just thought they were a vampire!!!!!!!....please, is there anyone OUT THERE WHO COULD USE A PORPHYRIA CHAT FRIEND,,,,,,I KNOW I COULD......

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  Joined New Group

  Posted by: Ripvanrep

  Posted: 07/21/2018

  Ripvanrep joined the group Porphyria.

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  New Friend

  Posted by: Ripvanrep

  Posted: 04/27/2018

  Ripvanrep became friends with TeamDS.