yukonwhitehorse

Activity

• Common Variable Immunodeficiency
  

  Igg levels

  Posted by: yukonwhitehorse

  Last Reply: sp33 03/22/2018

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  i do 40 mg of Hizentra infusions at home. My immunologist will only check on me every 6 months. I live in Waterloo, Ontario and would like to know if there is some sort of home test so I can check my igg levels every week so that I can miss a week or give myself 2 infusions that particular week. Does anyone know if there is such a thing

• Common Variable Immunodeficiency
  

  Hizentra

  Posted by: yukonwhitehorse

  Last Reply: Rainbow51 02/21/2018

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  Hi, I am very happy to have people to talk to and help with support as i live in KW Ontario and we have no support groups here at all. In the one and a half years I started and found out I have Primary Immune Deficiency (at age 53), low igg,iga,igm, I have never met anyone with this. Since I have started Hizentra home infusions 3 months ago every week I infuse 40 in three sites. I have a lot of previous surgeries on my belly, but was told I needed to infuse it into fat tissue, so that is my...

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  Joined New Group

  Posted by: yukonwhitehorse

  Posted: 02/10/2018

  yukonwhitehorse joined the group Common Variable Immunodeficiency.

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  New Friend

  Posted by: yukonwhitehorse

  Posted: 02/10/2018

  yukonwhitehorse became friends with TeamDS.