krbunn
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- Here is the update to my February 2016 video. It was made on March 17, 2016, one month after my plasma exchange, chemo, and discharge from my 13th hospitalization.https://www.youtube.com/watch?v=-zqDytNSIr0Next Cytoxan is Feb 23.--Kerry Bunn
- Iwant to raise awareness about myasthenia gravis from a different perspective: officially published "MG Fact Sheets." I appreciate the information provided, but some wording needs improving, especially the part about, "people with MG can live normal...
- I have not posted much lately, but here is an update of what has happened recently. My last PLEX was just before the 4th of July, 2015. February 23, 2016You may have watched my YouTube video 2016-02-10 Pre Appointment Summary. Here is the follow-up...
- Have you ever wondered if plasma exchange helps? It has been two weeks since I came home from the hospital and I have completed my post plasma exchange video. This was my 12th hospitalization. I had 5 days of plex for refractory myasthenia gravis....
- I am going back into Vanderbilt Medical Center tomorrow morning (06/29/15) for five more days of in-patient plasma exchange. I have become much weaker since my last video three weeks ago. Here is a video showing my current condition. I plan to do a...
- Been reading post, but not posting for awhile.It has been over one year since I made my last myasthenia gravis video, but today I did. You can find the video at https://www.youtube.com/watch?v=l7dh0vrkfdoI hope you enjoy watching. For those new to...
- I hope everyone had a safe, healthy, and merry Christmas. I have had several good weeks after my crisis in August. But, as you all know the MG antibodies build back. I have contacted my neuro and will be going back into Vanderbilt in early January...
- Just a quick note to let everyone know that I am still around. I have had the best month I have had in the last several years and I am very, very thankful. I am still on the increased 20mg prednisone daily from my last hospital stay. Of course, that...
- I have not felt well this past week. I have been very tired and had a bad case of the "don't cares." That is so not like me. This too will pass.I use a bipap for sleep apnea and to help with myasthenia gravis. A bipap is an advanced sleep therapy...
- Here is what has happened since Wednesday.Wednesday, August 20, MorningI am not feel great today. My vision is bad and I have a pressure feeling in the sides and back of my head. Just another fun day with MG!Lunch TimeCathy called and cancelled my...
- Still dealing with the Occipital Headaches, but getting nerve block injections. They seem to be helping. MG is still fairly stable after thymectomy. I see signs of very slowly going down hill, but not as fast as before.In the near future, I will be...
- Have any of you experienced mental issues with your MG?. Not emotional or forgetting issues, but cognitive or slight personality changes.Thanks --Kerry
- My post-surgery appointment was today (Monday, April 28). Cathy and I left Ringgold, GA at 8:00 AM because of the threat of bad weather; it stormed on us from Monteagle, TN to Nashville, TN. I also had a chest xray before my scheduled appointment. I...
- I am home after nine days at Vanderbilt, including five days of plasma exchange and a thymectomy. The surgery went well, but the post-op was a problem. My blood pressure and heart rate was high after surgery. I was in recovery for a long time...
- I am going to Vanderbilt on this Friday, March 28 for plasmapheresis until April 2. I will have a transcervical thymectomy on April 3. I will try to keep everyone posted on my blog at krbunn.blogspot.com as I can. I hop to do a new video today...