ReverseVampire

Activity

• Hemochromatosis
  

  Discussion Comment

  Posted by: ReverseVampire

  Posted: 03/14/2018

  ReverseVampire commented on the discussion Another newbie....

• Hemochromatosis
  

  Discussion Comment

  Posted by: ReverseVampire

  Posted: 03/14/2018

  ReverseVampire commented on the discussion Random Spike in Iron?!.

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  First Journal

  Posted by: ReverseVampire

  Posted: 03/14/2018

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  Hello, Not sure where to start but this is my first time journaling here. I am a universoty student (about to graduate) and was diagnosed with hemochromatosis last summer. It has been a roller coaster to say the least. In the beginning I was very worried about what it would mean for my day to day life, and stressed about some of the symptoms I was having. How would I succeed in school/life with fatigue and appointments getting in the way? I was so, so tired leading up to the diagnosis...

• Hemochromatosis
  

  Discussion Comment

  Posted by: ReverseVampire

  Posted: 03/14/2018

  ReverseVampire commented on the discussion liver Tumor.

• Hemochromatosis
  

  Discussion Comment

  Posted by: ReverseVampire

  Posted: 03/13/2018

  ReverseVampire commented on the discussion Worried about weekly bloodletting.

• Hemochromatosis
  

  Random Spike in Iron?!

  Posted by: ReverseVampire

  Last Reply: ReverseVampire 03/14/2018

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  Hello everyone,I recently took about 3-4 weeks in between phlebs (rather than my usual every other week) and when I went back to the doc my levels had more than doubled and now I'm doing weekly blood letting. Doc said maybe it's because I was sick during that break and inflammation increased my ferritin? It took almost 5 months to get my levels down and in less than 1 month I'm right back where I started! Has anyone else experienced this kind of relapse? Did the doc say why?

• Hemochromatosis
  

  Discussion Comment

  Posted by: ReverseVampire

  Posted: 01/24/2018

  ReverseVampire commented on the discussion Newly Diagnosed and SLEEPY.

• Hemochromatosis
  

  Discussion Comment

  Posted by: ReverseVampire

  Posted: 01/24/2018

  ReverseVampire commented on the discussion Worried about weekly bloodletting.

• Hemochromatosis
  

  Discussion Comment

  Posted by: ReverseVampire

  Posted: 11/17/2017

  ReverseVampire commented on the discussion Newly Diagnosed and SLEEPY.

• Hemochromatosis
  

  Discussion Comment

  Posted by: ReverseVampire

  Posted: 11/17/2017

  ReverseVampire commented on the discussion new hh patient alcohol effects.

• Hemochromatosis
  

  Discussion Comment

  Posted by: ReverseVampire

  Posted: 11/06/2017

  ReverseVampire commented on the discussion Newly Diagnosed and SLEEPY.

• Hemochromatosis
  

  Newly Diagnosed and SLEEPY

  Posted by: ReverseVampire

  Last Reply: shirl1935 02/24/2018

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  Hello, I'm new to this group and new to hemochromatosis! I've undergone 4 phlebotomies (every 2 weeks) so far and I feel like sleeping all the time and have this "brain fog" a few of you have spoke of. Does anyone have any tips/strategies that help with the fatigue? I am a student and very active and I've been relying on naps and coffee to get things done but is there anything else I can do to stay more alert until the phlebotomies are farther apart and my ferritin goes down? 

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  Joined New Group

  Posted by: ReverseVampire

  Posted: 11/02/2017

  ReverseVampire joined the group Hemochromatosis.

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  New Friend

  Posted by: ReverseVampire

  Posted: 11/02/2017

  ReverseVampire became friends with TeamDS.