cloudone

Activity

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  New Friend

  Posted by: cloudone

  Posted: 12/09/2019

  cloudone became friends with Meliss.

• Hemochromatosis
  

  Discussion Comment

  Posted by: cloudone

  Posted: 11/15/2019

  cloudone commented on the discussion Do any other HH persons suffer from pain like me?.

• Hemochromatosis
  

  Discussion Comment

  Posted by: cloudone

  Posted: 07/28/2018

  cloudone commented on the discussion I feel as if I’m doomed to suffer.

• Hemochromatosis
  

  I feel as if I’m doomed to suffer

  Posted by: cloudone

  Last Reply: FPgal 10/06/2018

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  Still going through phlebotomy but instead of 3 weeks now it’s 6. I have an enlarged liver and stenosis and fibrosis.They found a growth on one of my kidneys along with the usual bowel. The headaches seem to be increasing again and my gut pain continues. After dealing with this for 2 and a half years and not getting much relief I feel as if I’m doomed. You go to doctors and more doctors and you don’t seem to get very far. Between my back being screwed together and the hemochromatosis the...

• Hemochromatosis
  

  Discussion Comment

  Posted by: cloudone

  Posted: 04/27/2018

  cloudone commented on the discussion horrible stomach pains.

• Hemochromatosis
  

  Discussion Comment

  Posted by: cloudone

  Posted: 01/31/2018

  cloudone commented on the discussion Confused...anyone else?.

• Hemochromatosis
  

  Discussion Comment

  Posted by: cloudone

  Posted: 01/26/2018

  cloudone commented on the discussion Headaches.

• Hemochromatosis
  

  Discussion Comment

  Posted by: cloudone

  Posted: 01/25/2018

  cloudone commented on the discussion Headaches.

• Hemochromatosis
  

  Discussion Comment

  Posted by: cloudone

  Posted: 11/02/2017

  cloudone commented on the discussion Big drop in ferritin after only 2 phlebotomies?.

• Hemochromatosis
  

  Discussion Comment

  Posted by: cloudone

  Posted: 11/02/2017

  cloudone commented on the discussion Looking for info....

• Hemochromatosis
  

  Discussion Comment

  Posted by: cloudone

  Posted: 11/02/2017

  cloudone commented on the discussion best ferreten level for hereditary homochromatosis.

• Hemochromatosis
  

  Discussion Comment

  Posted by: cloudone

  Posted: 10/12/2017

  cloudone commented on the discussion Genetic Testing Moral Dilemma.

• Hemochromatosis
  

  Headaches

  Posted by: cloudone

  Last Reply: cloudone 01/26/2018

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  Hi new hereI became ill in 2015 with all sorts of gastrointestinal problems I lost my gallbladder in 2016 while they were in there they biop the liver and found stage 4 iron and also fibrosis and something else . They said in report heavy iron deposits and recommended testing for hemochromatosis. Doctors were reluctant to test for but made them. I was suffering from severe fatigue,headaches,pain in hands,arms,joints,and problems with going to the bathroom. I have HH double mutated genes. I had...

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  Joined New Group

  Posted by: cloudone

  Posted: 10/10/2017

  cloudone joined the group Hemochromatosis.

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  New Friend

  Posted by: cloudone

  Posted: 10/10/2017

  cloudone became friends with TeamDS.