Tina-Lawson's Posts | DailyStrength

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Carimune IVIG COST

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I got my insurance statement today and they charged us 9,995 a bag for Carimune times 5 bags. Does this amount seem right. This was not including the hospital stay. Insurance had preapproved the stay but not the IVIG and this was not what we where...
Been A while

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I took a break from some of the boards for a while. Here is the latest update on my husband.November 2010- Myasthenia CrisisAchilies Tendon Surgery(From reinjury due to recent falls)December- MG was causing constant doubled vision, problems...
Update

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Its been a while, and we are heading to a new Neuro in Atlanta, Emory- Dr. Vita Kesner. Anyone know her?Arnold had another crisis (no vent) about 4 weeks ago. His muscles got so weak he could not move his limbs for about 9 hours, he felt like he was...
Mestonin Increased

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Hubby had a EMG Repeative and Pulmonary test( He was having a good morning but the EMG showed titers and Pulmonary was good but had some low levels...They increased Mestonin to 60 mg every 4 hours. He has stomach cramps and rumbling, and has had one...
Prednisone, Mestonin(SP), and Imuran

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Even though we have the script IVIG will not be approvd by insurance-bad part it would have helped the neuropathy, mg and celiac. I am appealing. We have the mesoninone take this?Husband has been out of work due to chronic pan and fatigue since Aug....
update- repeatitive EMG

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Arnold had his repeatitive EMG 2day--well she said on a scale of 1(being death) and 10 being moderate....he was a 5....So we will be going 2 surgeon about thymus gland removal, even though no abnormalities. Doctor said this could be a cure, and he...
Questions????

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We saw local Neuro this week, after setting up IVIG for Aug. 9th Cleveland Clinic ordered at our local infusion center. Well hubby was getting IVIG for Neuropathy, MG, and said it would help celiac 2.Well she wants to change his meds to...
Update- Question

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Husband saw the eye doctor he doesnt have droopy lid etc but has the vision disturbances of generalized MG...was told loss of vision for the short one minute spells is a symptom of MS???IVIG is moved to Aug. 9 pending insurance...
bones pain..and update

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After they did blood work and the IV the nurse told my husband to breathe they give IRON Infusions all the time. He said IRON, she said yes thats what we have u down for. He had to decline and demanded to speak with doctor, well insurance was not...
IVIG and Disabling

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I am still worried about the IVIG with his doctor not knowing about MG or the Autonomic small fiber neuropathy. Do u all really think it is safe for it to administer 400 mg for 6 months with the first dose over 5 days and then pushing another 400...
IVIG

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Dr. Gupta said he was not familiar with MG or Neuropathy and we need to get a local doctor not just the ones in cleveland. Well in Macon, GA our family dr and rheumo doctor done have a clue and only pain doctor knows. They said they would do the...
Help-advice please

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My husband has MG, Celiac, Autonomic neuropathy small fiber, peripheral neuropathy, degenerative disk dis., spinal stenosis, spondylosis, hypertension, low vitamin levels, amino acids, and testerone and sleep apnea.In march he was taken by ambulance...
Update-mg, small fiber..IVIG?

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Thanks 2 all who replied 2 my husband post. Well we have final diagnosed of Celiac Disease, Chronic Gastritis, Myasthenia Gravis, Autonomic Small Fiber Neuropathy, H-Polori, spinal stenosis, spondylosis, pheripheryl neuropathy and still pending...
New for my husband

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My husband agt 43 had to take a leave from work last Aug. after 5 hyears of increasing pain, muscle and bone detoriation. Diagnoses:Spinal Stenosis, Spinal Spondylosis, Myopathy, myasthenia gravis, Autonomic Small Fiber Neuropathy, Peripherial...