Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Arnold had his repeatitive EMG 2day--well she said on a scale of 1(being death) and 10 being moderate....he was a 5....
So we will be going 2 surgeon about thymus gland removal, even though no abnormalities. Doctor said this could be a cure, and he may not need meds......?????
So we will be going 2 surgeon about thymus gland removal, even though no abnormalities. Doctor said this could be a cure, and he may not need meds......?????
I am so very sorry that your hubby is going thru this. I have had MG for 14 yrs now. I had my thymus removed a month after diagnosed. I was on Prednisone and Mestinon for awhile and then in 1999 I went into respiratory distress and they put me on Imuran and took me off of alot of my Mestinon and I still struggle on a daily basis but I am alot better than I was then. I'm just so exhausted all the time, can't do anything without becoming so weak and tired. Tell your hubby not to worry about surgery if thats an option. I was never in any pain. It wasn't that bad at all. Has he had plasmapheresis before?
(((HUGS))))
Kim