Bummed

Serce 03/12/2013
Are there any things you find that help you .......things you do or don\'t do to help your spirit? It may sound odd, but I have found that I can slow down, do less, rest more.......lots of things like that, but what has helped me the most if the way I think, the way I deal with emotions........and most importantly the way I treat myself.........I try to be very patient, kind, gentle......and respect myself each and every day.........cause it is hard to be ill and it takes a toll on the spirit...........it helps me deal with the tougher times.........and we\'ve all seen some tough pain and mind numbing exhaustion. It took me a long time to stop pushing through the pain until I clunked over and learn how to pace........learned how to park my sorry stubborn self at home, rest, putter.......slow way way down and then slowly add things back in. i don\'t get it right all the time .......these conditions are tricky........and there are penalties when we overdo.........the PEM is rough........so rough. Hear to listen.......we all need to grieve this change and somehow find our way to make life as comfortable as we can...............it is hard ..........so hard sometimes and it can feel like there will never be any good days............when I have a good day it is such an incredible gift...............there are a lot of very quiet days leading up to that one or two days of can do.........but I cherish them............each and every one. savor them because they are fine, freeing and restorative.......nite, sorry i ramble when i\'m tired and i am tired........hugs!