Zellweger Syndrome Support Group
Zellweger syndrome is a rare, congenital disorder characterized by the reduction or absence of peroxisomes (cell structures that rid the body of toxic substances) in the cells of the liver, kidneys, and brain. If you or a loved one is suffering from this syndrome find the support you need here.
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I just found out my little girl has Zellweger Syndrome. I hadn't heard of it before yesterday. She is 7months old. I... READ MORE
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Saturday December 20th will be the 4th anniversary she left my arms to go to Heaven. Its a sad time.
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Hello. My name is Pamela Marshall. I am the Family Registry and Support Group Coordinator for the Global Foundation for... READ MORE
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I have joined this site and I offer two more sites one is for any peroxisomal disorder... READ MORE
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Has any parent had success with changing the amount of very long chain fatty acids in their child\'s diet?
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heartbroken. . .
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I really pray for anyones kid with this disorder.
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