Zellweger Syndrome Support Group

Zellweger syndrome is a rare, congenital disorder characterized by the reduction or absence of peroxisomes (cell structures that rid the body of toxic substances) in the cells of the liver, kidneys, and brain. If you or a loved one is suffering from this syndrome find the support you need here.

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Zellweger Syndrome Support Groups

I have joined this site and I offer two more sites one is for any peroxisomal disorder

http://health.groups.yahoo.com/group/Peroxisomal_Disorders/messages

Another is the Zellweger Baby Support Network

www.zbsn.org

When my daughter was born with ZS there was hardly any information out there to help families so I am glad to see more and more interest and support for this rare and terrible syndrome.