Williams Syndrome Support Group
Williams syndrome is a rare genetic disorder characterized by a distinctive, "elfin" facial appearance, an unusually cheerful demeanor, ease with strangers, a love for music, and cardiovascular problems. Persons with Williams syndrome generally possess very good social skills, to the point that this condition is sometimes called "cocktail party syndrome." This group can...
We have been in the hospital over a month with one of my 2 month old twins. After 4 surgurys, now they are saying there is a large possibility that he has Williams Syndrome. We are doing a CT tomorrow to look at his aorta because they think its too short. What am I supposed to do now? He already has a trach because he has a narrow airway and a feeding tube because he was "failing to thrive". How am i supposed to do this, I have 3 other children, one being his twin brother( who is completly healthy). Im scared and confused. Some advice would be pretty amazing at this point.
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My wife and I are also the parents of twin 29 y/o girls, Kris 5'1" has Williams Syndrome and Nicole 5' 10" does not. It is a heavy cross for all of us to bear but we bear it with determination. There are other people with conditions much more severe than Williams Syndrome. Aknowledging that, has given us strength. We are not without trials and tribulations but we thank God every day for our good fortune. We are expecting our first grandchild. I wish you the best, God Bless you and your family.
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This isn't really bipolar related but there is never anyone on the parenting groups, this is the most active group I've been in.My 6yr old son has really bad seasonal allergies and they're in full force right now. He gets a terrible cough; he coughs all day and all night, making it hard for him to sleep, and his nose runs.I've tried every allergy medicine, OTC and RX, and none of them affect his...
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Is anyone here allergic to Sulfa that is currently taking Diamox? I have been diagnosed with IH now for almost 2 years. I am allergic to Sulfa drugs meaning that my throat will swell up so my Neurologist put me on Topamax. I was suffering from major loud whoosing noises and the topamax helped that but everyday I still hear those mainly between 6 - 12 pm. I am at my wits end and have not went...