Urinary Incontinence Support Group
Urinary incontinence is the involuntary excretion of urine from one's body. It is often temporary, and it almost always results from an underlying medical condition. Stress, functional, and urge incontinence are the most common forms. Share with other support group members and learn from their stories and experiences.
I had a sling implanted following incontinence that developed after pregnancy and also have a neurological disorder. I have urge incontinence, a bladder that does not empty completely and now sometimes have to strain to empty my bladder after starting to leak minutes earlier. I used a pessary for 10 years but decided to get a permanent solution. I underwent surgery for a sling to support my bladder but didn't get relief. The surgeon said that because of my neurological disorder, he couldn't do anything else. I found another neurologist who worked with patients to find treatments. She implanted the Medtronic Interstim. It worked for me was I continued to increase the signal. When I maxed out the setting in one year, I switched to botox. The first injections gave me complete relief for six months. The second injections did not help at all. After using half a dozen pads a day, I just underwent more testing to determine if material injected to narrow the urethra would help (no) or if a sling under my urethra would help (yes). Implantation of a sling (my third surgical procedure for this problem) will end the leakage, my doctor says. But I will not be able to empty my bladder. I will have to use catheters four times a day. I will undergo this procedure to end the incontinence and stop urination from preventing a 'normal life' because I have to make so many trips to the bathroom, devote too much time to simple urination, use least half a dozen pads a day, frequently change clothing and take a medication to help me empty my bladder but not fully solve this problem. I am not the only person who must rely on catheters. My decision is based improving my life by addressing my problem as best I can--I'll never ever wear diapers--while I work on my major health issue--mobility--and living the best life I can.
There are two systems from Arcus Medical - Afex and Folex - both worth looking into. There are also other external means such as condom catheters, sheath urinals, and like me, Foleys.
Everyone is different- take your time, have a good long consult with your urologist, evaluate your life style and the pros & cons of what's out there against what you will & won't want to deal with as a part of your daily routine - and go from there.
Very best wishes -