Monnie45,
No, I do not enjoy talking about it, but, talk or no talk, I still need to deal with it. It is exasperating, and it makes functioning in public more of an adventure than I care to undertake. I would really like to read material on bowel management and skin care. I use Nullo to manage odor, and try to keep a running estimate of timing, which, currently, for me, runs to 48-60 hours between BMs. This is not foolproof, and sometimes I get caught. I also try to manage fiber and fluid intake, but I could use some advice there too. I guess I could welcome you, but that too would be inappropriate for such an exasperating condition. Perhaps a little shared support and insight would be useful, and I can at least offer that.

Have you seen a doctor and if so, what were you told. I have rectal prolapse.

Monnie45,
My doctors have told me that the nerves to that part of my body no longer work as they should. I have had surgeries and several physical therapy sessions devoted to incontinence management. I wish there were some sure cure, but I guess I'll have to settle for incremental improvement. I regularly see some five specialists in addition to my family doctor. I would like to read some qualified medical advice in this area.

I have the same problem. But, I have multiple sclerosis too, and that messes with the nerves in my bladder and bowels. I've started wearing diapers and quit worrying about it so much. Apparently there's nothing else to do.

Hello Monnie,
I'm new to this site, but am glad I've joined. I suffer daily, multiple times a day from both urinary and fecal incontinence. Yes it is very annoying, very humiliating. I've dealt with it my whole life also...so if you'd like to chat, I would LOVE to as well.

Nicole-

I've had problems since 1985 .I also have C5-6
and t10 incomplete spinal injury so I have big time problems with my bottom end. All you can do is smile and go on with life.Like Forest Gump says Life is like a box of chocolate

I also have prblems front and back and I saw there was no group for fecal problems and so I just created onethe group is Encopresis Fecal Incontinence

" I also have prblems front and back and I saw there was no group for fecal problems and so I just created onethe group is Encopresis Fecal Incontinence "



http://dailystrength.org/groups/encopresis--fecal-incontinence

I was born with spinea bifida so am completely incontinent and have been for almost 51 yrs. I have a trained bowel so that is not a problem until of late when i seemed to have developed ibs, a food allergy, diverticulosis, celiac disease or some such that results in periods of uncontrolled diarrhea am going to look into this new group.

I have been doubly incontinent for quite a few years. I'm disabled with MS , several strokes & other issues. At this point I'm cared for 24/7 and although I have had periods where I have trained my bowel and minimized the frequency of accidents. You never completly get away from it. As well as my other issues & medications cause my BMs to be much looser and more frequent so , I'm in diapers anyway for complete loss of bladder control. My best advice in change as soon as a bowel event and clean well. Powders . creams etc.

HI MONNIE: THIS IS MY FIRST TIME USING A SUPPORT GROUP FOR MY DOUBLE INCONTINENCE. LAST YEAR I HAD LASER SPINAL SURGERY TO CORRECT 2 HERNIATED DISCS IN MY NECK & MY CORD WAS BURNED BY THE LASER CAUSING THE DAMAGE TO MY BLADDER & BOWEL. IT ALSO CAUSE NERVE DAMAGE TO MY 4 EXTREMITIES & NUMBNESS IN MY TORSO. SOME TRADE OFF! I HAVE BEEN TRYING TO COPE WITH MY PROBLEMS FOR THE PAST YEAR. I WAS IN THE HOSPITAL FOR 2 MONTHS AFTER SUFFERING A SEVERE ABCESS ON MY SPINAL CORD AND DEVELOPING MENANGITIS & ENCHEPHILITIS [I THINK THAT'S HOW YOU SPELL IT???] AND WAS CRITICAL FOR WEEKS. I'VE LOST MEMORY OF 3 WEEKS WHILE I WAS CRITICAL. SO I'VE HAD A LOT TO COPE WITH THIS YEAR. I'VE IMPROVED A LOT BUT STILL HAVE THE NERVE DAMAGE AND THE INCONTINENCE. I'M HAVING A LOT OF TROUBLE DEALING WITH ALL OF THIS. MY THERAPIST SUGGESTED THAT I GET ONLINE WITH A SUPPORT GROUP TO HEAR HOW OTHERS ARE COPING AND MAYBE LEARN SOME TIPS ON HOW TO DEAL WITH HAVING ACCIDENTS ETC. I'M HAPPY TO BE ALIVE AND SO IS MY FAMILY, BUT THERE ARE TIMES THAT I FEEL LIKE LIFE IS VERY HARD & JUST BEING ALIVE AND GREATFUL ISN'T SO EASY, ESPECIALLY WHEN ALL THINGS HAPPENED BY A CARELESS SURGEON. I AM TRYING TO LOOK AT THE "GLASS" AS HALF FULL INSTEAD OF HALF EMPTY. I'VE HAD A WONDERFUL SUPPORT SYSTEM WITH MY FAMILY, BUT UNLESS YOU ARE STRUGGLING WITH THESE PROBLEMS, IT'S HARD TO REALLY KNOW HOW IT FEELS. SOMETIMES THEY TELL ME "WELL, YOU'RE ALIVE..." AS IF THAT'S ALL THAT MATTERS. QUALITY OF LIFE IS ALSO IMPORTANT. BUT I MUST CONFESS THAT AFTER READING SOME OF THE ENTRIES, I FEEL GUILTY COMPLAINING. I DON'T HAVE MS OR SPINA BIFFIDA ETC. BUT MY PROBLEMS FEEL LIKE MOUNTAINS TO ME. CAN YOU - OR ANYONE ELSE OUT THERE - HELP ME? I NEED TO LEARN HOW TO HAVE A MORE APPRECIATIVE AND POSITIVE ATTITUDE. I GUESS I'M STILL IN THE "FEELING SORRY FOR MYSELF" STAGE. I'D LOVE TO GET PASSED THIS AND VIEW IT ALL IN PERSPECTIVE. DO YOU UNDERSTAND WHAT I'M DTRYING TO SAY? HOPE SO, MAIR

I once in a while have messy accidents but most often I am able to know when I need to void my bowels. It is extremely embarassing when that happens in public. And quite icky to clean up. However, I've been lucky as far as no messy leaks.

Hi, you have had a very difficult time. I do understand, aside from having problems with incontinance I also was diagnosed with Meniere's Disease which causes dizziness and also a for of muscular dystrophy which causes muscle weakness. I am scared. I don't know what kind of condition I will be in years to come. The problem with incontinance seems small now. I am still working full time and find it difficult. I am almost 65 so I hope I can soon consider retirement. I would like to give you some encouragement but things could be much worse. I tell my self that daily.

Marlene