I don't understand it either . I had a issues about 15 years ago now but I too wore 24/7 and had used the same primary doctor for about 5 years prior then 1 day on a vist for a physical that the insurance want they discovered that I wear when I undressed well I got the same thing you got plus I ended up changing doctors because every time I went it was the same thing I was treated like a child had to dis robe every vist and they insisted on taking a rectal temperature every vist I'm a dibabetic so it was every 3 mos

I think the reason that they have such a problem with it is because society has made it that way. There is such a stigma against it. All we can do is work to change that.

You are so right celticgirl05! In a way I reckon we have to be gentle "educators" and "ambassadors" for our syndrome - which after all is so common world-wide in all societies - and has been since before history began! Sometimes you even have to convince people you are OK in the head!!

At least when you pas the 50 mark they seem to be much more accepting. My continence nurse was very good and didn't judge at all. She just said if you are happy with the way you are managing your problem then we'll keep on supplying the pads. My Doctor and Urologist never mention how I manage the problem. I guess they leave that to the continence nurse.

I'm 15 years old and I have Cerebral Palsy (CP), which, apart from leg muscle spasticity and poor motor function in my hands, has left me with urinary incontinence 24/7. I have needed hospital procedures to reduce muscle spasticity, so they know that I wear nappies. The only thing that they have commented on, is that I wear terry nappies and polyurethane pants rather than disposables. My mum explained that I am allergic to the stuff that disposables are made from so I wear terry towelling nappies instead. Unfortunately, hospital nappies are all disposables, so when I needed changing they used some sort of pad that covered the absorbent part of the disposable, so that my skin didn't come directly into contact with it. This helped, but I still got some minor irritating rashes during my hospital stays.

I suppose that they are used to seeing CP kids, teens and even adults who need nappies, so they aren't surprised by it. I also have weekly physiotherapy sessions, so the physiotherapist lady also sees me in my nappy and doesn't think anything about it as she sees quite a few CP kids and teens, some of whom need nappies.

I wear the underwear diapers at night but XL is all I can find. I went to a health place and bought diapers and they are so large I can't wear them. I haven't tried the underwear protection from a health place but can only find XL at Walmart and Krogers which is too small for me. I would like to have one night without changing my sheet when I wake up. I use pads but nothing helps most nights. I would save on the water bill if this could be controlled. The doctor has me on Myrbetriq. It would cost me with my insurance $180 or more. He gives me samples. I have a bladder infection almost constantly so can't tell if they are working.
Doctor wants to try the Instrimin on me. I don't really want it since it can cause problems. If it works then he would have it put inside my body and the battery would have to be changed every 5 years. I am on blood thinners and don't want to have surgery. I keep thinking there has to be a pill out there somewhere that will work without surgery. I am thinking about changing my doctor.

Ann try the internet you probably find a product that would work for you I had the same issues of being overweight ,diabetic ,sleep apnea high blood pressure heart bypass take all kind of meds. including blood thinners two year ago my urologist recommended a surpa pubic catheter it is a very minor surgical procedure in which they insert a catheter though the surpa pubic area two now I wear a leg bag during the day and at night I use larger bedside bag I have visting nurses 3 time a week they change the dressing 3 times a week and the catheter once every 30 days it was the best thing I ever did and better then dealing with diapers good luck and god bless

Many in the medical area feel that there is a cure for everything and everyone. In our society, it has been drilled in to many that diapers are for babies and the really old people. I have been bladder incontinent since 2008 and thankfully with all the medical things I have gone through, no one has questioned my diapers. If they do, I would be as bold as you were and somewhat bolder too. The fact that you explained to her that you are already being treated by a urologist should have stopped all her questions.

I think if this happens, I might question what type of underwear they are wearing and then tell them they are to young or old for that type they should get something made for their age, lol.

I agree the fact that they have been told you are incontinent should be enough information the only question should be if they need to examine you in that area is do you need help or can change your self and what ever you chose to wear for underwear is your business and no ones elses

I have had 3 major operations in the last 10 years. the nurses and aids were OK for the most part they provided me with the cheapest diapers they could find granted. but i had to ask them to assist me with changing esp after my back surgeries

and that is the biggest part of the problem comes in the most of the nurses and aids don't like to change adult diapers

Why were you going someplace other than your normal clinic/hospital? I had a medical emergency last week (my spleen was bleeding into my stomach). Called 911, the paramedics showed up. Told them about the medications I'm on and that I wear diapers to manage my incon. They were cool with the whole thing. I was taken to my hospital, where after being checked in I was asked again very professionally about the diapers. I simply told the admitting nurse that I'm being treated for incontinence. Gave her the name of my urologist who works at the urology center in the hospital. They had all my medical information at that point. I ended up being there for 2 nights and will have to return for surgery next month. While I was there they provided me with diapers (except for the few hours I was cath'd when I was being monitored for immediate surgery). A few of the doctors asked questions in regard to my incontinence and treatment, but everyone was very professional and very courteous to me and my condition.

Parker, what you went through really should be the norm no matter what hospital you go to, but we all know they are not the same.

Like I noted in my post earlier, I am grateful that through all the things that I have gone through that majority of the medical staff was very understanding and supportive.

There was one time when I was in the emergency room and the doctor request urine sample. The only way to get a urine sample from me is either cath me and or put something down there and wait till my bladder lets lose. Well the nurse taking care of me, I could tell didn't want to cath me and because of that my stay in the ER was extended for about 3 plus hours. It took my wife asking them what were we waiting on before the doctor made the nurse cath me to get the sample.

I have a medical note/list I keep in my wallet with all the medical information that would be needed and I have listed my bladder incontinence and that I use adult diapers to control it. I always give any medical place I go a copy of this to help keep my records straight.